Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Share Your Story

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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Episodes and my first seizure

01/2018 | 3 Comments

I had my first grand mal seizure on December 16. My husband woke up to me having it and called an ambulance. All scans and mri came back clear. Eeg...
VNS problems

01/2018 | 0 Comments

I have had a VNS for over 5yrs. For the past month I have had to keep the magnet taped over it because it continuously goes off I cough until I get...
Living With Epilepsy: A Two Part Series

01/2018 | 1 Comments

Hi! I've been living with epilepsy since 2004 when I had my first seizure and discovered I had an AVM. I have written a two-part series about...
HELP

01/2018 | 3 Comments

Hey. So im 18 years old and i just got diagnosed with myoclonic epilepsy. I had my first seizure just a week ago and now im on keppra. My doctor told...
New to this

01/2018 | 1 Comments

Hello everyone my name is cindy I am a 50 yr old woman just found out in Dec 2017 that I have epileptongenic focus seizures my career may be over my...
My Experience With Epilepsy

01/2018 | 0 Comments

Hey, everyone, I’ve had epilepsy since 2010 and decided to share my story. Hopefully it’ll help someone. https://joshn1234.wordpress.com/2018/01/04...
My seizures

01/2018 | 0 Comments

I first started having seizures after I was electrocuted in '11. I was at my sister's baby shower and got electrocuted due to exposed wiring. I lost...
Sheila

01/2018 | 1 Comments

I am 76yrs and had a stroke 18 months ago, and a few months after that I had my first seizure. Then every few months I would have another one, they...
My story hopefully it helps

01/2018 | 3 Comments

Hi all I'm 39 yr old male. My first seizure occurred when I was 10. It was a hot day. Came home had a seizure. Went to the hospital they figured it...
Seizure while on vacation

01/2018 | 4 Comments

Hi All, My 4 year old daughter just had a seizure while we are in Dominican, shes been out in the sun all day and didn't nap, also didn't have a good...
Ayuda

12/2017 | 2 Comments

Buenas tardes yo sufro de epilepsia me la diagnosticaron en el 2014 soy de Honduras y por la falta de oportunidades y la poca ayuda a la enfermedad se...
My battle with epilepsy

12/2017 | 2 Comments

When I was two years old I had my first seizure at school I am 13 now I went to the hospital and my eeg was normal then a day later I had another...
My Epilepsy Story

12/2017 | 1 Comments

Hi, I am 29 and a half years old boy. I had my first Tonic-Clonic seizure in 2004, when I was 16, on a lovely evening around 5 pm out of my native...
What it feels likes to me...

12/2017 | 3 Comments

So I just joined this group, and I don’t normally do this, but I can’t sleep, so I’m going to vent a little. “About what?” you’re surely asking...
Very sleepy even though I get rest.

12/2017 | 2 Comments

I've been on ny meds for epilepsy. Keppra. It's december and I started it in August. I've been very sleepy even though I have been getting lots of...

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