Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Share Your Story

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Epilepsy In Prison, A Tough TIme

01/2019 | 5 Comments

My Epileptic issues started in 2017 when I experienced a car crash due to going unconsious while driving. I hit 2 parked cars, totaling my car. 2...
Job termination questions

01/2019 | 0 Comments

I feel as if my company is targeting me by assigning my job responsibilities to another manager. A new manager just started a month ago or so and she...
Our family living with epilepsy

01/2019 | 2 Comments

My youngest daughter, Charlee, had her first grand mal seizure when she was ten months old. The doctors kept telling us it was just febrile. I knew it...
hello

01/2019 | 2 Comments

Nice to join this web
My story

01/2019 | 1 Comments

I started having seizures while pregnant. Then I started to have two more after I had my first baby. I started taking keppra one dose in the morning...
What kind of seizures are these?

12/2018 | 0 Comments

Hello, I am a 23 year old male living in Germany. My mother is 49 years old and she had her first "seizure" in November 2018 while we were eating...
Epilepsy and Relationships

12/2018 | 1 Comments

I've lived with my boyfriend for 2 years now. The beginning of this year, he had 4 awful seizures in the middle of the night while he was sleeping...
Embrace 2 bracelet

12/2018 | 1 Comments

I was thinking about getting the Embrace 2 bracelet. Got a prescription from my Neurologist and it stated that I have localization related focal...
Did i have a seizure?

12/2018 | 7 Comments

Hi there, I am a 31 yr healthy ( as far as I know) female and I think I might have had a seizure. I don't have any history of seizures so im kinda...
My story

12/2018 | 1 Comments

Four days ago while at work I had a seizure. Ended up in the ER. Blood work and CT scan came back normal. This was my first seizure ever. A littld...
starting with phenobarbital

12/2018 | 1 Comments

I'm quite new with epilepsy.. i have myclonic seizures so i started taking phenobarbital 8 months ago and i have been seizure free for 4 months now...
Does this sound like a seizure?

12/2018 | 3 Comments

This has been happening off and on for the last two years, often multiple times per day. It usually happens upon standing up but will sometimes occur...
How long can an aura last?

12/2018 | 4 Comments

I was diagnosed with generalized epilepsy. I've been seizure free about a year and a half now, but i'll get these strange feelings every once in a...
Small seizure brought on by sound

12/2018 | 3 Comments

About 7 months ago started having what I think are small seizures. Certain sounds like a chip bag or someone eating would start to trigger a sound in...

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