Migralepsy?

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I was wondering if anybody else has been struggling with the same thing as I so I decided to post this on a forum. I have had periodic seizures since I was 16 (every 6 months) and was put on anti-epileptic medication (topamax); however, when I had my second seizure at the age of 17, my metabolic panel was completely off. When I came into the hospital, my phosphorus was at a 1.0 with the second test being 1.5 (normal levels being ~2.5-4.5). My CT scan came back normal, they gave me liquid phosphorus, and moved me to another hospital. Once at the other hospital, they took my blood test again and my phosphorus was a 4.6; however, my calcium was below a 7.31 (normal is 8.5-10.5), potassium below 2.7, and chloride above 11.3. The endocrinologist reasoned the heavy breathing could have caused the low phosphorus and the phosphorus meds could caused the low calcium whereas the neurologist stated the seizure wasn't primary and was caused by a metabolic issue. Additionally, every time I wasn't on the medication or tried to get off the medication, I would have a seizure and it would seemingly be around my menstrual cycle. I believe the cause of my seizures has to be a metabolic issue due to my miscued levels. Even the reasoning of the heavy breathing could be correlated to metabolic acidosis which points to why I would have low phosphorus. I also speculated that my seizures could be caused by hypocalcemia that are overexciting my nerve cells due to the fact that I have an overflux of neurotransmitter glutamate compared to GABA. Anyone else struggle with this issue or have any ideas?

Comments

I have not had the issue with

Submitted by birdman on Sat, 2020-03-28 - 20:01

I have not had the issue with altered metabolic panel causing seizure. As a child I when I went in for serious seizures my levels showed elevated white blood counts. There was always the question of whether the high white blood count caused the seizure, or did the seizure cause the white blood count to go up.Everyone is different and so your story emphasizes the need for patients to keep a diary of seizures and other data they think may be relevant.

Hi, Thank you for posting and

Submitted by Anonymous on Mon, 2020-03-30 - 09:03

Hi, Thank you for posting and for sharing your story. We cannot determine if the cause of your seizures is related to a metabolic issue, or a separate issue. It’s best that you follow-up with your healthcare provider to discuss this further and if you experience any changes in seizure type/frequency, side effects, moods, behaviors and symptoms, to help determine what individual treatment plan is best for you. Many clinics and offices are now offering telehealth options for non-emergencies, or routine check-in appointments. Ask your doctor’s if you can schedule a time to talk via phone/other telehealth resources you can utilize, or if they can make any additional recommendations for you Some metabolic issues or low levels of minerals in the body may affect seizure activity. https://www.epilepsy.com/learn/triggers-seizures/nutritional-deficiencies . Additionally, some women with epilepsy report having an increase of seizure activity around the time of their menstrual cycle, likely related to hormonal changes. https://www.epilepsy.com/learn/triggers-seizures/menstruation . As Michael suggested in his comment, keeping a journal or a diary may be helpful in tracking your seizure and identifying potential triggers. This can help you and your healthcare team detect potential patterns, allowing you to modify your behavior and lifestyle, as appropriate.My Seizure Diary can be used to organize your health issues, manage medications, record side effects, other therapies or personal experiences and more which can be shared with members of your healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline , or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates

Hi, Thank you for posting and for sharing your story. We cannot determine if the cause of your seizures is related to a metabolic issue, or a separate issue. It’s best that you follow-up with your healthcare provider to discuss this further and if you experience any changes in seizure type/frequency, side effects, moods, behaviors and symptoms, to help determine what individual treatment plan is best for you. Many clinics and offices are now offering telehealth options for non-emergencies, or routine check-in appointments. Ask your doctor’s if you can schedule a time to talk via phone/other telehealth resources you can utilize, or if they can make any additional recommendations for you Some metabolic issues or low levels of minerals in the body may affect seizure activity. https://www.epilepsy.com/learn/triggers-seizures/nutritional-deficiencies . Additionally, some women with epilepsy report having an increase of seizure activity around the time of their menstrual cycle, likely related to hormonal changes. https://www.epilepsy.com/learn/triggers-seizures/menstruation . As Michael suggested in his comment, keeping a journal or a diary may be helpful in tracking your seizure and identifying potential triggers. This can help you and your healthcare team detect potential patterns, allowing you to modify your behavior and lifestyle, as appropriate.My Seizure Diary can be used to organize your health issues, manage medications, record side effects, other therapies or personal experiences and more which can be shared with members of your healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline , or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates

Hi, Thank you for posting and for sharing your story. We cannot determine if the cause of your seizures is related to a metabolic issue, or a separate issue. It’s best that you follow-up with your healthcare provider to discuss this further and if you experience any changes in seizure type/frequency, side effects, moods, behaviors and symptoms, to help determine what individual treatment plan is best for you. Many clinics and offices are now offering telehealth options for non-emergencies, or routine check-in appointments. Ask your doctor’s if you can schedule a time to talk via phone/other telehealth resources you can utilize, or if they can make any additional recommendations for you Some metabolic issues or low levels of minerals in the body may affect seizure activity. https://www.epilepsy.com/learn/triggers-seizures/nutritional-deficiencies . Additionally, some women with epilepsy report having an increase of seizure activity around the time of their menstrual cycle, likely related to hormonal changes. https://www.epilepsy.com/learn/triggers-seizures/menstruation . As Michael suggested in his comment, keeping a journal or a diary may be helpful in tracking your seizure and identifying potential triggers. This can help you and your healthcare team detect potential patterns, allowing you to modify your behavior and lifestyle, as appropriate.My Seizure Diary can be used to organize your health issues, manage medications, record side effects, other therapies or personal experiences and more which can be shared with members of your healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline , or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates