Absence seizures upon awakening

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Hello, my name is Don, and my 27 year old son has had absence seizures since the 3rd grade. He currently takes Lamictal and Fycompa. His main issues occur as soon as he wakes up, he will stay in a sleep walking like daze for sometimes 10, 15, even 20 minutes. Sometimes after he goes to the bathroom or sits on the toilet he's good, for the entire day!!

Comments

https://atkinsforseizures.com

Submitted by irangel on Mon, 2020-03-16 - 22:57

https://atkinsforseizures.com/dietary-chemical-seizure-triggers/

Hi, Thank you for posting and

Submitted by Anonymous on Tue, 2020-03-17 - 09:40

Hi, Thank you for posting and for sharing your story. This could be related to a number of things, so it’s important that you all are following-up with his healthcare team to explore this further and if he experiences any changes in seizure types/frequency, side effects, symptoms, moods and behaviors, to help determine what individual treatment plan is best for him. Sleep disorders are often overlooked in people with seizures and sometimes polysomnography (also called an overnight sleep test) is required for diagnosis. To learn more about Sleep Disorders such as Confusional arousal or sleepwalking, please visit: https://www.epilepsy.com/learn/challenges-epilepsy/sleep-and-epilepsy/sleep-disorders . It may be helpful to keep a journal or a diary to help track his seizures and document how he’s feeling. Tracking seizures, moods, and behaviors over time may help you all and his doctors to recognize patterns, allowing him to modify behaviors or lifestyle as appropriate. My Seizure Diary can be used to organize your health issues,manage medications, record side effects, develop seizure response plans, and more which can be shared with members of his healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary. It’s common for those who are in caregiver role to feel overwhelmed. It's important to remember that you are not alone, and that you’re and making your health and overall well-being a priority. https://www.epilepsy.com/sites/core/files/atoms/files/Caregivers%20factsheet.pdf It may also be helpful to connect with other parents who may have similar experiences, to ask questions, find & give support to each other, by visiting: https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/parents-helping-parents . Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline . Or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates, to find support groups, events, and programs in your community.

Hi, Thank you for posting and for sharing your story. This could be related to a number of things, so it’s important that you all are following-up with his healthcare team to explore this further and if he experiences any changes in seizure types/frequency, side effects, symptoms, moods and behaviors, to help determine what individual treatment plan is best for him. Sleep disorders are often overlooked in people with seizures and sometimes polysomnography (also called an overnight sleep test) is required for diagnosis. To learn more about Sleep Disorders such as Confusional arousal or sleepwalking, please visit:  https://www.epilepsy.com/learn/challenges-epilepsy/sleep-and-epilepsy/sleep-disorders . It may be helpful to keep a journal or a diary to help track his seizures and document how he’s feeling. Tracking seizures, moods, and behaviors over time may help you all and his doctors to recognize patterns, allowing him to modify behaviors or lifestyle as appropriate. My Seizure Diary can be used to organize your health issues,manage medications, record side effects, develop seizure response plans, and more which can be shared with members of his healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary. It’s common for those who are in caregiver role to feel overwhelmed. It's important to remember that you are not alone, and that you’re and making your health and overall well-being a priority. https://www.epilepsy.com/sites/core/files/atoms/files/Caregivers%20factsheet.pdf It may also be helpful to connect with other parents who may have similar experiences, to ask questions, find & give support to each other, by visiting: https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/parents-helping-parents . Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline . Or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates, to find support groups, events, and programs in your community.

Hi, Thank you for posting and for sharing your story. This could be related to a number of things, so it’s important that you all are following-up with his healthcare team to explore this further and if he experiences any changes in seizure types/frequency, side effects, symptoms, moods and behaviors, to help determine what individual treatment plan is best for him. Sleep disorders are often overlooked in people with seizures and sometimes polysomnography (also called an overnight sleep test) is required for diagnosis. To learn more about Sleep Disorders such as Confusional arousal or sleepwalking, please visit: https://www.epilepsy.com/learn/challenges-epilepsy/sleep-and-epilepsy/sleep-disorders . It may be helpful to keep a journal or a diary to help track his seizures and document how he’s feeling. Tracking seizures, moods, and behaviors over time may help you all and his doctors to recognize patterns, allowing him to modify behaviors or lifestyle as appropriate. My Seizure Diary can be used to organize your health issues,manage medications, record side effects, develop seizure response plans, and more which can be shared with members of his healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary. It’s common for those who are in caregiver role to feel overwhelmed. It's important to remember that you are not alone, and that you’re and making your health and overall well-being a priority. https://www.epilepsy.com/sites/core/files/atoms/files/Caregivers%20factsheet.pdf It may also be helpful to connect with other parents who may have similar experiences, to ask questions, find & give support to each other, by visiting: https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/parents-helping-parents . Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline . Or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates, to find support groups, events, and programs in your community.

Hi Don,as an epileptic, who

Submitted by irangel on Mon, 2020-03-23 - 00:21

Hi Don,as an epileptic, who has not taken any AEDs for over 3 decades and, I was able to be AED free after making a minor dietary change in my teenage years whereby I reduced the amount of my daily calcium intake. Both you and I know that epilepsy is idiopathic, hence, why the Epilepsy Foundation stresses the need to maintain a 'My Seizure Diary'.After becoming Absence Seizure free since my teenage years, I found that, as an adult, the following items triggered my childhood epilepsy symptoms: Mortar mix Latex paint Nitrile glovesAll 3 items above contain calcium carbonate.Please check out https://atkinsforseizures.com/dietary-chemical-seizure-triggers/ for what is listed on this website may or may not give you and/or your son a clue to this idiopathic disease. As for my hyper-sensitivity to calcium carbonate, it's listed in Atkins for Seizures' website as ,Antacid,.......for antacid is calcium carbonate and it's found in many foods and non-food items.Irma