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Kids with Epilepsy - treatments and costs

Thu, 07/09/2009 - 03:22

Our 3 1/2 year old son was just diagnosed.  Not only was that hard to accept, (he has other issues too), but then when I went to get the meds filled (lamictal) I was told the copay after insurance was $985/mo.  We can't even pay our bills right now, not to mention adding $1000 to our monthly expenses!!!

Does anyone have any suggestions?  I tried contacting the insurance co which said an appeal for this type of med does not have a good track record.  I called GSK the manufacturers who said that because we have insurance, we only qualify for a discount card of UP to 30%.  Wow!!  $700/mo - really, not helping me here.

Tried Canada and was told the meds are different and not to use the online pharmacies as you never know where the stuff is coming from and what you might actually get.

I am also concerned about giving this drug to such a young boy.  Side affects are really freaking me out.

HELP!!  Anyone????

Thanks, concerned mom in California.

Comments

Re: Kids with Epilepsy - treatments and costs

Submitted by wyboemail on Thu, 2009-07-09 - 08:55

Cyndie,

Check this site out http://www.epilepsycalifornia.org/ they should be able to help or get you to the proper people to help. Good luck and if you ever need to chat just email me. curtis.wybourn@us.qbe.com

Curt

Cyndie,

Check this site out http://www.epilepsycalifornia.org/ they should be able to help or get you to the proper people to help. Good luck and if you ever need to chat just email me. curtis.wybourn@us.qbe.com

Curt

Re: Kids with Epilepsy - treatments and costs

Submitted by kristinstrom on Thu, 2009-07-09 - 17:17
Do NOT use mail order pharmacies!!!  Our insurance has their own pharmacy and my daughter got incredibly sick from what the doctors believe was conterfit medication!  Although Abbott did take a report of the incident, nothing else was done.  Be very careful!!!  It's not worth the savings!

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