Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Parents & Caregivers

Cortical dysplasia

09/2017 | 0 Comments

I'm looking to connect with parents of children who were born with CD.. my daughter started having seizures after 2 hours of being born. Has undergone...
Medical marijuana strains ratios doses

09/2017 | 3 Comments

Hello my daughter is 4 years old and is on onfi and lamictal which I'm pretty sure make her sick she doesn't speak yet and also on medical marijuana I...
Possible seizure?

08/2017 | 0 Comments

What visiting my grandson of 3 month old last night he had just had a bath and I was feeding him his bottle, when I Noticed that milk was pooling on...
Medication vs natural remedies

08/2017 | 7 Comments

I am wondering if there's anyone out there that has opted to go a more natural route for preventing seizures vs the typical medication prescribed. I'm...
22 month old

08/2017 | 1 Comments

My 22 month old started having seizures on Friday morning then proceeded to have 6 more all in less than 24hrs. We where admitted to children's...
Nighttime Seizure Monitor

08/2017 | 1 Comments

I haven't posted here in years. This place was a lifeline to me when my daughter was first diagnosed. Looking for advice on nocturnal seizure monitors...
Newly diagnosed 6 year old

07/2017 | 2 Comments

Hi! My daughter is 6 and was diagnosed with cyclic vomiting syndrome at 2 years old. We have lived with that diagnosis for Years. She worsened about 8...
Looking for Support of Other Caregivers

07/2017 | 2 Comments

Hello, I am new to the forums. Hoping I can find a support group for caregivers. My wife has had undiagnosed epilepsy since head trauma sustained when...
Myclonic epilepsy

07/2017 | 3 Comments

My 17 month old was just diagnosed with myclonic epilepsy.. help!!! They started him on medicine and I am a wreck.. what should I expect?
Juvenile Myoclonic Epilepsy

07/2017 | 2 Comments

Hi Everyone, I'm new to this group. My son has had Juvenile Myoclonic Epilepsy since March 1997. He almost 35 and he usually has a seizure one or...
Constantly Worried about 16 yr Old Son

07/2017 | 5 Comments

I am constantly worried. My son is 16. He has a grand mal seizure seems like every 4 months not sure what triggers them. I'm an er nurse and have had...
Abnormal EEG, no seizures

06/2017 | 5 Comments

My son had an eEG a few weeks ago, dr said the eeg is abnormal but no seizures. He had several sharp spike and wave episodes generalized. Mainly in...
Scared and Concerned

06/2017 | 3 Comments

My daughter turned 14 on May 20. A week later she collapsed on the kitchen floor while doing dishes. We ran in and found her convulsing on floor and...
Photosensitive - Sunlight Triggered Only

06/2017 | 4 Comments

My son was diagnosed last year with photosensitive epilepsy - but it's only triggered with Natural Sunlight (video games, strobe lights, etc don't...

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