Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Parents & Caregivers

summer camp?

03/2007 | 5 Comments

My daughter is 9 and went to a "spend the night" church camp last year. This was before we new about her epilepsy. She wants to go back, but I am so...
Family Activities Suggestions

03/2007 | 0 Comments

A family outing has become a rare occurance -- and if we make it through without a meltdown, it's considered a success. We have 4 kids - daughters 11...
2 year old and tegretal

03/2007 | 5 Comments

Hi, Just wondering about tegretal and any experiences you might have... my son was just put on tegretal 3 times a day because his seizures have not...
Intractable Seizures

03/2007 | 2 Comments

Hello I was just wandering if anyone had any answers to some questions I have. The Doctor said my son Carter (20months old) has intractable siezures...
changing meds

03/2007 | 2 Comments

Makenzie started having alot of seizures agian.Its only been three weeks since the last cluster of seizures.She saw the neruo 2 days ago and she does...
Seizure clusters

03/2007 | 8 Comments

Hi again....I am curious about 'clusters' of seizures in other kids. In the last 6 months, if my son has a seizure on a given day, whether big or...
Seizure Protocol at School

03/2007 | 5 Comments

I am just curious about what some of you have in place for seizure protocol at school. My son (freshman in HS) is in an 'active' seizure cycle and we...
Hereditary Epilepsy in Children

03/2007 | 5 Comments

Most people are very lucky...they go through their whole lives never worrying about seizures unless/until they or someone they know develops epilepsy...
My 2 year old needs new furniture

03/2007 | 0 Comments

Anyone know of resources to purchase a heavy duty changing table. Our local stores only cary ones for children up to 30 pounds maximum. And they all...
Lennox Gastaut?

03/2007 | 15 Comments

Hi ... I'm searching for answers -- like we all are -- and finding none that satisfy the need to know. I guess It's the answer to "WHY" I'm still...
New & Frustrated

03/2007 | 1 Comments

Hello, my name is Cindi and my 9 yr old son Dylan was dx'ed with having Complex Partial seizures last Oct. Our Neurologist put him on Tegratol 100 mg...
behavior problems

03/2007 | 2 Comments

Hi, Does anyone know if Lamictal and Valproic Acid can cause behavior problems? My 10yr old daughter seems to be having a lot worse behavior problems...
PILLOWS

03/2007 | 1 Comments

Does anyone have anti suffication pillows? If so where did you get them. My son has nocturnal seizures and these pillows have been on my mind. He is...
Medicine change again

03/2007 | 2 Comments

Carter is on Felbatol 200mg tid and Zonegran 100mg 1time a day. Know the doctor is taking him off of Zonegran and putting him on Topamax. I dont quite...

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