Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Parents & Caregivers

vagal nerve stimulators

08/2016 | 1 Comments

i have a 3 year old who has epilepsy from a stroke at birth. she has been somewhat resistant to AED's. We are considering a vagal nerve stimulator...
Losing body/muscle control when sick?

08/2016 | 1 Comments

My 45 yo brother has epilepsy and cognitive impairment as well. In recent years, when he gets sick (e.g. viral infection, etc.), he frequently loses...
My daughter with Myoclonic jerks....

08/2016 | 1 Comments

Hi All, I deeply appreciate your inputs as I am new & entering in to the ring of the world of this forum. My 2.6 years old daughter had a GCTS on July...
Update on my daughter

08/2016 | 1 Comments

So things are still crazy but not as bad. Phoebe just had an eeg not this past week but the week before and was there from mon morning through Friday...
Keppra for 1 Year old?

08/2016 | 2 Comments

Hi everyone, I am very new to this and am not sure if I am even in the right place to ask this question. My one year old daughter has been having...
Bed safety

08/2016 | 0 Comments

Has anyone had any issues with a child getting hurt if they have a seizure while their arm or leg is poking through the bars of a crib or enclosed bed...
Medication

08/2016 | 0 Comments

So my 7yr old son has memory loss more so during the school year when he is under more stress. He has reading and writing difficulties. He only has...
23 yr old son

08/2016 | 2 Comments

Our son has had breakout seizures lately due to non compliance with meds and lifestyle. He insists he can drive but we tell him no and he gets angry...
Three daughter now have epilepsy

08/2016 | 0 Comments

Just an update on my post of daughters with epilepsy Abbie had her first Tonic Clonic seizure in April so now all three girls have epilepsy. Abbie has...
hearing loss after 4 serious seizures

07/2016 | 0 Comments

Today my partner suffered 4 massive seizures. She's had them before, but never like this. From a sound sleep she started to thrash like crazy. She...
New to the group

07/2016 | 0 Comments

Hello. I'm from Canada and joined this group looking for advice. My son is 21 months. He's been having seizures since he was 9 months old. First...
Would you medicate ?

07/2016 | 1 Comments

Hello newbie here! Our 9 year old child has just been diagnosed. 5 seizures over the last 2 years (that we know about) - all have been just as...
Possible misdiagnosis

07/2016 | 1 Comments

My 2 1/2 year old has been having seizures with only one abnormal eeg and others coming back normal but is still having tons of what looks like...
Sleep Myoclonus and Abnormal EEG

07/2016 | 3 Comments

My 5 year old son abruptly started having very audible/noticeable sleep myoclonus a night in March while he was sick with a sinus infection. This...

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