Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Parents & Caregivers

How many meds?

03/2006 | 2 Comments

My son (21 months) has been on Tegretol, Dilantin and Depakote and is now just taking Depakote, as the Tegretol did not control seizures and gave him...
My baby is shaking-need ideas!

03/2006 | 1 Comments

I have a 21 month old son with a seizure disorder that is awaiting further investigation by a neurologist in May. Until then, we wait and play the...
Learning Disabilities and Epilepsy

03/2006 | 4 Comments

My son is 7 years old and was diagnosed with Epilepsy when he was almost 5 (July 2004). I don't know the exact name of his Epilepsy but he has Frontal...
seeking similar story

03/2006 | 4 Comments

hi, i am new to this site and am looking to talk with someone in a similar situation as my son and family. my son is 11 years old with refractory...
First Time Experience

02/2006 | 8 Comments

Ok This is my first time Posting but i was hoping that, someone could please help me out. My daughter Is 2 years old, when she was 6 monnths old she...
Anyone with a newborn baby with Epilepsy

02/2006 | 4 Comments

My son is almost 3 months old and he has epilepsy.He has Absense ,Grandmal and Seizures where he quits Breatheing.When he was born he was perfectly...
Myoclonic Sx mitochondrial disorder

02/2006 | 3 Comments

My now 18 month old grandaughter has been diagnosed with myoclonic seizures and some degree of mental retardation, yet they still have not given us a...
Worried mom of teenage daughter

02/2006 | 8 Comments

My beautiful fourteen year old daughter was diagnosed at ten years old with seizure disorder syndrome after two back to back tonic seizures. She had...
Tremors while writing

02/2006 | 2 Comments

My 7 yr.old with partial seizures ,on Trileptal since Sept had complained of tremors while she was doing her homework. Her handwriting was definitely...
Books for kids/Explaining Epilepsy

02/2006 | 1 Comments

My daughter is 7 and wants to know why she has to take her medication. I have Epilepsy too and take the same medicine, but I have a hard time...
Absence Seizures ??????

02/2006 | 27 Comments

My daughter (9) was just recently diagnosised with absence seizures and has started taking Lamictal. Everyone I talk to looks at me like I am crazy...
anrgry parents

02/2006 | 1 Comments

I just recived an e-mail from an angry mother for a comment made on entertainment tonight Mary Hart was doing an interview with Paula Abdoul,Paula was...
Long term effect ?

01/2006 | 2 Comments

Hi, we have a 14 yr old girl (K) who has been treated for epilepsy for 5-6 yrs now. We are only on drug number 3 but may need to try another. K has...
eight and a half hours

01/2006 | 2 Comments

I just got on this sight today. My daughter Melody has had seizures since 2 months of age. She is fourteen now. At the age of 18 months she seized for...

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.

Subscribe