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Vegan or vegetarian while living with epilepsy.

Fri, 03/18/2016 - 00:31
Hi guys, I'm new here! I was hoping to get some feedback or hear some stories from people who are vegan or vegetarian living with epilepsy. This is a bit of a long one but I feel very strongly about this topic. I know it's not exactly a scientific case study but an anecdotal one at least. I've put meds, vegan & vegetarian in caps to scroll through.) I had my first 2 tonic clonic seizures in 2012. I was diagnosed with epilepsy at 23 (2013) after 2 tonic clonic seizures. I had been VEGITARIAN for 6 years at that point. I began taking LAMICTAL and everything was fine. A low dose sorted me out for a long time, I was 11 months free of Tonic Clonic seizures before I had another one (2014). I began increasing the LAMICTAL. The myoclonic, complex partial & simple partials were happening for the 11 months since the last tonic clonic but didn't raise too much concern for me. I never took it seriously (I'm an idiot for that). My main problem with my epilepsy was self inflicted-anxiety(which I've been on meds for since I was 22), lack of sleep, excess caffeine & alcohol on the rare night out). I became VEGAN at 23(early 2014) 2 years ago and I was super healthy & happy for a long time. Then 7 months later I got a whopper of a tonic clonic at work after a heavy session the night before. I had never been able to party like my friends but again, in my stupidity (to be fair I was 24) I pushed through it & got myself in a situation where I had to increase my LAMICTAL and 3 months later I had to drop out of a college course that I was doing because the seizure had triggered the myoclonic, simple & complex seizures in a really bad way. I couldn't right myself. At the time of that seizure I was in college and working 2 jobs (6 days a week), again stupidity. I had my bloods checked 10 months into my new VEGAN diet and everything was perfect, in fact better than most people's. I left college and remained working one job (ironically I work in a health shop which I've been trained for). More time off meant less stress and a return to a proper balanced diet (still VEGAN). However I began looking at working full time in a more senior position, I worked really hard for 5 months leading up to this the last 2 months before the promotion were absolutely insane hours, sometimes 14 hours a day-ergo the increase in caffeine & lack of sleep. (In this time my LAMICTAL was increased again). I began this high intensity stressful & physically active job in September. One month later in October 2015 after a work night out I had the worst tonic clonic seizure of my life. I had the seizure at work before the shop opened & the person working with me had no idea what to do & went into shock. She was out sick with PTSD for over 2 weeks. I got only 2 days off work because I needed to help cover her shifts. The first day back at work I asked for a shorter shift than 9 hours, I was given 10 hours instead-as what I feel was almost a punishment for taking time off. When the woman came back she explained that I had been having back to back seizures for 20 minutes!!! She was in shock & never told the EMTs that so I was never brought to hospital. Because of this & the lack of recuperation time I didn't even last a full month at work before I had to ring in sick after several days of being sent home from work in a taxi (literally walked to the taxi, put in & sent on my way in a daze-with 0 understanding or sympathy). Though I wasn't told directly I was made aware that my strict VEGAN life style was being blamed for my epilepsy, I also recieved this ridiculous accusation at home from my father despite having been VEGETARIAN when I was diagnosed (after 5 years seeing cardiologists and endocrinologists!). My diet was healthier than almost everyone else I know. I have been out sick now for over 4 months. I had my bloods checked again in January 2016- again absolutely perfect. Since having the last tonic clonic seizure I have been put on 400 mg of LAMICTAL a day. I was on 1000mg of KEPPRA a day up until a month ago when the depression from it got the better of me, I'm almost entirely weened off it, 250 mg a day now & totally gone in 2 weeks. I've been put on VIMPAT, still increasing it. I'll have reached 200mg a day before they review. I am no better now that I was in November. Having had my bloods checked I am 100% sure that my VEGAN lifestyle is in no way to blame for all of this madness. My GP is ok with it having seen my blood results but does stress the need for my diet to stay balanced. My neuro seems indifferent, but it's the people in my life that disagree with VEGANISM & don't care enough to understand epilepsy that give me the most grief about my lifestyle. I absolutely refuse to give up this lifestyle. So long as your diet is balanced (which includes treats in my opinion) and your bloods are all good (do take B12-everyone should, VEGANS & NON-VEGANS alike) I am confident that VEGANISM is no problem.

Comments

He is a vegan. The keto diet

Submitted by Alliwoo on Thu, 2018-01-18 - 09:21
He is a vegan. The keto diet can be fiddly. The art is to eat a healthy plant based wholefood diet that can be as efficace as Keto for Epilepsy. It is doable we just have to stop buying into the BS about meat, dairy and eggs being good for you!

I wanted some feedback on

Submitted by L0neW0lf on Mon, 2019-07-22 - 19:58
I wanted some feedback on this very subject, I am pretty much into a Vegan way of life after being Vegetarian for many years. My husband will pretty much eat anything I make as long as it tastes good so I kinda dragged him into my lifestyle too. I have noticed an increase in his seizures though and was wondering if this was the reason too. His blood work looks good but I am still worried that I am causing this with how I feed him. He has a review with his Neurologist this week I was going to ask him what he thought. Thanks for the question and the answers too , good luck with everything <3

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