Community Forum Archive

So many questions...

Mon, 04/06/2020 - 10:44
On 12/17/2018 I had a random seizure sitting at my desk at work. All the tests came up with nothing (thankfully, I guess). Things were going along swimmingly until midnight last Monday when I had a series of three seizures while sleeping. The last one at 3:00am prompted my wife to call 911. I'm 51 and have never had any issues with seizures and I'm really confused. I had been having what my doc diagnosed as anxiety attacks which I vehemently disagreed with. I would develop tunnel vision, then feel like I'm going to pass out, then break out in a profuse sweat. When the attack is over, I'm left exhausted and soaked with sweat. The day of my first seizure, I had 7 of those "attacks" prior to the seizure. I'm convinced these "attacks" are related to the seizures. I have a referral to a neurologist but she's on maternity leave until July. Going to call my doc and see if he can get me to someone sooner.


Hi, Thank you for posting. We

Submitted by Anonymous on Tue, 2020-04-07 - 09:20
Hi, Thank you for posting. We are glad to hear that you have a referral to see a neurologist.It's important that you’re following up with your healthcare team to review these episodes you describe experiencing further and if you continue to experience any changes in symptoms, side effects, behaviors, or moods, to help determine what individual treatment plan may be best for you. Many clinics and offices are now offering telehealth options for non-emergencies, or routine check-in appointments.You may want to call your doctor and if you can schedule a time to talk via phone/ other telehealth resources you can utilize to discuss this further, or if they can make any additional recommendations. Be open and honest with your doctor about your feeling and how this is impacting your health and daily life. You may also want to consider keeping a journal or a diary to help keep track of your episodes, (in detail like you’ve done in your post) and document how you’re feeling. My Seizure Diary can be used to organize your health issues, track seizures, manage medications, other therapies or personal experiences and more, which can be shared with members of your healthcare team. . Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, 

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