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Seizure while conscious but during the night
Wed, 02/18/2015 - 10:33I know there is a similar post on here, but my situation is a little different and I am really desperate to hear of someone who may experience the same thing. I have been to see a neurologist, had a sleep deprived EEG and and MRI and they can find nothing.
So to describe what happens. In between that sleep and awake phase I sometimes experience a fit or seizure. I am completely aware that it is happening. For example, I had one last night that went on for a minute or two and I was saying to myself to 'wake up and move' whilst desperately trying to reach out to my husband to wake him up. After I came round, I was aware of what happened and whispered to my husband to see if he was awake and aware of what happened. For some reason was awake, he wasn't aware that I had jerked or moved, but something woke him up.
These started when I was about 20 and I am now 42. In later years they have become more frequent and are worse when I am stressed or unwell and I think this is because I then linger more in the drowy state between being asleep and awake. They are more common when I am trying to get to sleep where they hit just in that place when you are about to drop off starting with something i can decribe as a very piercing screech in my ears or perhaps an electric shock going through my body. Normally this wakes me up completely and then I try again to get back to sleep.
Every now and again I have them while asleep and they wake me up. It is really scary, especially as no one seem to know what they can be. I did see something once on Yahoo Answers where a person decribed the same thing. I tried to contact them, but the post was a while ago, so I wasn't sucessful. I appreciate this is probably mild compared to what some of you are dealing with on a regular basis, but it is really stressful not knowing what this could be and whether there is anything I could be doing to stop them happening.
Does anyone experience something like this or have any advice for me? I would be really grateful.
Welcome Many of the things yo
Submitted by Anonymous on Wed, 2015-02-18 - 17:55
Welcome Many of the things yo uposted could be seizures. Nocturnal seizures happen at night or wile one is sleeping. They also happen right before you go to sleep or right after waking up.As for the neurologist not finding anything on th EEG and the NRI. There are many people whos tests all come back normal. Now if the neurologist was just a neurologist then they may not look at everythinng close. A neurologist specializing in epilepsy may run the same tests and come up with the same information. Hoeever the specialist might also discuss a longer EEG which can be an ambulatory EEG or a video EEG. One is where they get you set up and you carry the unit arrouns and do your average work at home. Anythng you normally do can be done. In mine I had to take the unit in late sat, and they reloaded it and changed the batteries. Monday evening I took in in. That was it doc then lookes at everything.and he did see abnormaities that weren't on the normal EEG. In the video EEG they give you an MRI. They hook you up and yo uare in the unit while it runs for days. People can come in and visit yo ucan watch movies. I watches movies had friends over and they were there off and on almost all day. I was in th unit for about 5 days. While you are there they are videoing you so if they see a spike or an avnormalitiy then can then look closer at the video to view you closer to see anything that could be a part of a seizure.. I also had a friend bring me a few books.With the use of technology the specialists ca find more and their diagnosis are better. 22 yearswithout looking into this was not a good thing since the longer one goed without treatment the more frequent and strnger the seizures will get. I hope this helps Joe