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new to this site
Tue, 11/30/2004 - 09:56I have just found this site and would like to know if anyone else has experienced late onset seizures? Mine started when I was 31 and the doctors told me it was due to stress, tension and and long hours. Has anybody else encountered this?
Comments
RE: RE: new to this site
Submitted by howart on Mon, 2004-09-20 - 03:42
I have been lucky with only having 3 seizures total. I had been on Dilantin at the first and the side effects were terrible, then when I discussed this with my neurologist, he had started me on Felbatol. shortly after that there were some reported major problems with that drug and my doctor and i discussed going off my medication since i had been seizure free for about 3 years. we decided that I might take Zoloft to reduce any stress and 1 year later I had another seizure. I found out that Zoloft does have a small possibility of causing seizures and we decided that I would have to take seizure meds after all. I have been taking generic tegretol and have not had any problems so far with side effects and have been very blessed at not having any seizures. I feel for you as these seizures that you have, have taken a huge toll on you. even though i do not have anywhere near the amount of seizures that you experience, i know the feelings that can come from having to live with the thoughts of worry and anxiety of having another. i do feel that some of my other health problems that i have been experiencing have come from my last seizure about 5 years ago. i have had some memory problems and have tried to cope with them but at times it gets very frustrating. i do think that being able to share with others that it does help reduce some of the feelings that we have. good luck and god bless
howard
I have been lucky with only having 3 seizures total. I had been on Dilantin at the first and the side effects were terrible, then when I discussed this with my neurologist, he had started me on Felbatol. shortly after that there were some reported major problems with that drug and my doctor and i discussed going off my medication since i had been seizure free for about 3 years. we decided that I might take Zoloft to reduce any stress and 1 year later I had another seizure. I found out that Zoloft does have a small possibility of causing seizures and we decided that I would have to take seizure meds after all. I have been taking generic tegretol and have not had any problems so far with side effects and have been very blessed at not having any seizures. I feel for you as these seizures that you have, have taken a huge toll on you. even though i do not have anywhere near the amount of seizures that you experience, i know the feelings that can come from having to live with the thoughts of worry and anxiety of having another. i do feel that some of my other health problems that i have been experiencing have come from my last seizure about 5 years ago. i have had some memory problems and have tried to cope with them but at times it gets very frustrating. i do think that being able to share with others that it does help reduce some of the feelings that we have. good luck and god bless
howard
RE: RE: RE: new to this site
Submitted by littlerunningbear on Fri, 2004-10-01 - 21:25
Hi Howard, I hope this note is finding u well. I am 44, and that is what the doc is leading towards, left temporal lobe. I would love to chat with you on line, this is all a bit confusing for me. I would love to know how you began to notice the problem started, what were your symtoms. Mine was dizziness, and the vertigo became a major issue, with motion sickness. I will be looking for u on line in the chat room. Thanx Bear
Hi Howard, I hope this note is finding u well. I am 44, and that is what the doc is leading towards, left temporal lobe. I would love to chat with you on line, this is all a bit confusing for me. I would love to know how you began to notice the problem started, what were your symtoms. Mine was dizziness, and the vertigo became a major issue, with motion sickness. I will be looking for u on line in the chat room. Thanx Bear
RE: new to this site
Submitted by mexican_fire on Sun, 2004-09-19 - 19:18
Hi,
I sort of experience that same thing. I was recently diagnosed with TLE (Temporal Lobe Epilepsy), in May of this year. I am a 31 year old female.
When Epilepsy starts as an adult it is referred to as adult on-set epilepsy and it typically harder to control than epilepsy at a younger age.
THey are now saying to me that mine was a result of more than 15 years of nasty child abuse by my dad where he used my head as a battering ram on walls or with 2x4 etc, brain infections (meningitis 2 times, and encephalitis once), and a severe concussion I received in a car accident in December of 2002.
They said it is from accumulative brain damage. What I have up to this date, can not be recovered, so I ahve to live with permamnent memory difficulties, and other problems.
All five EEGs were abnormal, and they even uncovered Myoclonic seizures and Absence seizures in the EMU this March.
THey told me that Absence only occurs in adults if they had the seizures as a child and they never remissed. THey have no idea where the Myoclonics came from, but none-the less, they are here
I have FIVE types of seizures total. THe Syndrome TLE includes this triad of seizures: Simple Partial, Complex Partial, and Secondarily Generalized Tonic-Clonic.
THen the other two types I mentioned.
I take two AEDs. Neurontin, and it is maxed out at 3600 mgs, and Depakote ER at 1000 mgs.
I have a history of grand mal in my sleep as a child, and as an adult at 30, as well as Absence. It is funny how it took 25 years or more to put together all the peices. Part of that is because my dad and his family believed that iif you were sick it was a sign of mental weakenss, and NONE of them hardly ever went to the doc for anything, so if I had problwems he wouldn't allow my mom to take me to get them checked, and had this been caught, I wouldn't ahve what I have now.
We only started this testing in the last year and a half. My first neuro did 3 EEGs and they were all abnormal--2 for seizures in the temporal lobe, and one for generalized activity.
Then my epileptologist had one done and it was abnormal for seizures in the temporal lobe.
When I was in the EMU for the VEEG, they did another one in there when I was hooked up to 34 elelctrodes, and it came back really abnormal, because I had a seizure right at the hyperventilation point, afterwards.
I used to work in an ER triage department in the last state i lived in , for almsot 4 years, as well as on an ambulance for 6 months. When I moved here, I immediately lost my EMT liscence and can no longer practice with that many seizure types. Now I collect SSI, and am on state insurance, because I can't adffor all my treaments, tests, care, and meds.
I can't drive, and have to rely on Dial-a-Ride, and I get a disabled discount for that as well, which is half of what non-disabled people pay, plus, I get to make reservations anywhere from 1 day to 1 week in advance for riding.
Nancy
Hi,
I sort of experience that same thing. I was recently diagnosed with TLE (Temporal Lobe Epilepsy), in May of this year. I am a 31 year old female.
When Epilepsy starts as an adult it is referred to as adult on-set epilepsy and it typically harder to control than epilepsy at a younger age.
THey are now saying to me that mine was a result of more than 15 years of nasty child abuse by my dad where he used my head as a battering ram on walls or with 2x4 etc, brain infections (meningitis 2 times, and encephalitis once), and a severe concussion I received in a car accident in December of 2002.
They said it is from accumulative brain damage. What I have up to this date, can not be recovered, so I ahve to live with permamnent memory difficulties, and other problems.
All five EEGs were abnormal, and they even uncovered Myoclonic seizures and Absence seizures in the EMU this March.
THey told me that Absence only occurs in adults if they had the seizures as a child and they never remissed. THey have no idea where the Myoclonics came from, but none-the less, they are here
I have FIVE types of seizures total. THe Syndrome TLE includes this triad of seizures: Simple Partial, Complex Partial, and Secondarily Generalized Tonic-Clonic.
THen the other two types I mentioned.
I take two AEDs. Neurontin, and it is maxed out at 3600 mgs, and Depakote ER at 1000 mgs.
I have a history of grand mal in my sleep as a child, and as an adult at 30, as well as Absence. It is funny how it took 25 years or more to put together all the peices. Part of that is because my dad and his family believed that iif you were sick it was a sign of mental weakenss, and NONE of them hardly ever went to the doc for anything, so if I had problwems he wouldn't allow my mom to take me to get them checked, and had this been caught, I wouldn't ahve what I have now.
We only started this testing in the last year and a half. My first neuro did 3 EEGs and they were all abnormal--2 for seizures in the temporal lobe, and one for generalized activity.
Then my epileptologist had one done and it was abnormal for seizures in the temporal lobe.
When I was in the EMU for the VEEG, they did another one in there when I was hooked up to 34 elelctrodes, and it came back really abnormal, because I had a seizure right at the hyperventilation point, afterwards.
I used to work in an ER triage department in the last state i lived in , for almsot 4 years, as well as on an ambulance for 6 months. When I moved here, I immediately lost my EMT liscence and can no longer practice with that many seizure types. Now I collect SSI, and am on state insurance, because I can't adffor all my treaments, tests, care, and meds.
I can't drive, and have to rely on Dial-a-Ride, and I get a disabled discount for that as well, which is half of what non-disabled people pay, plus, I get to make reservations anywhere from 1 day to 1 week in advance for riding.
Nancy