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new here! can you help me out!`
Sat, 12/24/2005 - 11:14Topic: New to Epilepsy.com
Epilepsy
on monday 7th of novmber of this year i was laying in bed i was not feeling very well and so i stayed in bed and i woke up a few time thought the day and about dinner time i stared to shake the hole of my body! and i could not stop it from shakeing and i do remmber this one time.and every sen then my heands,arms,legs,feet will start to shake all on there owns i donno why this is happing to me!
and on the wensday day time i had just got back from college and i lay down for a bit and i strated to shake just one side of my body skuck
on the next tusday i was in class and working i was just liening to the teacher and i like went for a few mins i remmber i bit my tonge
2week after the wendsday when that happed to me it was sunday night i started to shake in my sleep i do nothing about this i had to be told this was happing to me!
when i have a fit in my sleep i all ways woke up afterwards i do not know this has happed i have to be told by my boyfriend.
and all the week i started to shake if i sat down or lay down someone phoned me one night i namal askner the phone but i did not anser this time but about couple time after wards i did my friend was worrding about me!
now i am at home for chismas i came home on the 16th of nowmber i do not feel gd at all!
on the monday night i think i had a fit i did not feel good at all felt ill so went to bed about 9:30pm and slap all the way thought till about 9:30 but i woke up feel not well at all tiyed back heart just not with it! on the wensday day time i went to the cinema and i sat waiting for my sister and i flet like i had gone for a few mins but i could hear eveything around me!
and that happed a few times that day.
i am so so scaryed of this now! becouse it happed and i know nothing about it! friends are saying i am having tonic clonic epilepsy.
i have been to the docs too and now i just waitin to go to the hostapl thought! but i need some adives please what is wrong with me!
plase can anyone help me out!
Re: new here! can you help me out!`
Submitted by coolcanadian on Sat, 2006-01-07 - 11:53
Hi cool, and welcome to the site. I have primary generalised tonic-clonic E. All of my sz are nocturnal. You've woken up in the morning and felt as if somebody had been beating you with a baseball bat, right? Sounds to me like you might be having an aura before you go into a daytime sz. In that way you're a bit lucky. Some of here have 'drop sz'. One minute you're OK, then you're picking yourself up off the floor. Several things come to mind- are you under a doc's care? If not, get one! If you have a general practitioner/primary provider who isn't getting your sz under control, get a referral to a neurologist or epilptologist. There are dozens of different meds your MD can use to treat your E. Finding this site can be a huge blessing to you. First there's a ton of info available from the main page. If you haven't yet, read the section on Epilepsy 101, it'll show you what all the many forms E takes and will give you a really good idea of what's going on with your particular form of E. Read up too on treatment and living with E.You'll see how the whole bunch of us other E's manage to cope with what we've got. The meds section ia a wealth of info too. Two more things and I'll bring this rant to a close. When you find an MD you feel good about treating you, make sure they know you're an informed patient. As a college student, I'm sure you can do the research to find out all that you can about E. Let them know you expect to partcipate in your treatment. After all you're your own favorite patient, right? Finally, get involved with the people here on this site. There's so much I've learned from the Forum page here. I'll encourage you to visit the chat room too. That's a way to see there's a whole bunch of people all around you with E. You surely aren't alone! Don't let E grind you down. There's folks like you and me who have it lots easier than some others of us. But here you are among friends. Come join us, OK? If you want to leave a message for me here, I'll keep a sharp eye out. Peace-cc