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This is my story
Mon, 07/10/2006 - 18:28Comments
Re: This is my story
Submitted by Anonymous on Mon, 2006-07-10 - 20:31
What the connections are, what to do etc needs to be sorted out by doctors involved. Endocrinologists who are familiar with neurological problems such as seizures can help, in addition to neurologists who specialize in seizures!
Hope this helps. Best wishes, Epilepsy.com Resource SpecialistWhat the connections are, what to do etc needs to be sorted out by doctors involved. Endocrinologists who are familiar with neurological problems such as seizures can help, in addition to neurologists who specialize in seizures!
Hope this helps. Best wishes, Epilepsy.com Resource SpecialistRe: This is my story
Submitted by yikes on Wed, 2011-04-13 - 13:46
I see this is written in 06a and now it is 11
I have epilepsy, I was on 1500,mg of depokote at night and 1000 in the am. pluss kepra and lamactal anyway
I had no idea I had thyroid cancer. They found it in the summer and did that litte biopsy thing. Then I had to go on this weird diet before I got the radiation pill thing done.
Anyway with the diet my matabalis got wacky. I told every one I felt like I was having a seizure. My sister tried to convinse me it was my body trying to get used to being with out the thyroid.
Finally I coud not take it any more and called the dr on call . They sugested the metablalism. My debokote level was skyu hi. So they kept me in the hospital for the radiaion. That was in November. I spent so much time in the hospital in November. Anyway they lowered my depokote er to 750 am and 750 pm. Yes like halve the medicine... Everyone said I would take my normal dose befor I got in the hospital.
My neurologist checked my level and she said I was doing fine. at the low amount of depokote er. I have had a few drop seizures since November.
Before November I was completly controlled since my high school years. I would only have drop seizures around a certain time of the month. And myclonic jerks. Now after all thease years with no thyroid I have droped a couple times all of a sudden,
Also every time I said depokote I was writting the generic kind Depokote ER 500 mg pill
So yes I have epilepsy then found thyroid cancer and I am 43 sorry for the mumble jumble.
I see this is written in 06a and now it is 11
I have epilepsy, I was on 1500,mg of depokote at night and 1000 in the am. pluss kepra and lamactal anyway
I had no idea I had thyroid cancer. They found it in the summer and did that litte biopsy thing. Then I had to go on this weird diet before I got the radiation pill thing done.
Anyway with the diet my matabalis got wacky. I told every one I felt like I was having a seizure. My sister tried to convinse me it was my body trying to get used to being with out the thyroid.
Finally I coud not take it any more and called the dr on call . They sugested the metablalism. My debokote level was skyu hi. So they kept me in the hospital for the radiaion. That was in November. I spent so much time in the hospital in November. Anyway they lowered my depokote er to 750 am and 750 pm. Yes like halve the medicine... Everyone said I would take my normal dose befor I got in the hospital.
My neurologist checked my level and she said I was doing fine. at the low amount of depokote er. I have had a few drop seizures since November.
Before November I was completly controlled since my high school years. I would only have drop seizures around a certain time of the month. And myclonic jerks. Now after all thease years with no thyroid I have droped a couple times all of a sudden,
Also every time I said depokote I was writting the generic kind Depokote ER 500 mg pill
So yes I have epilepsy then found thyroid cancer and I am 43 sorry for the mumble jumble.
Re: This is my story
Submitted by kcox1228 on Mon, 2006-07-10 - 19:13
How scary! I don't honestly know what could be causing the continuing seizures but I know what it feels like to wake up in an ambulance and not know what happened or why you are there... hang in there and let us know what the doctors say... hopefully somene on here knows something about your experience! Kristin