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My daughter, seizures, cerebral atrophy.

Thu, 07/14/2016 - 03:27
Can anyone help me understand what's happening..my daughter was diagnosed with epilepsy when she was 18 months, she's now 4.. she was brought in for a grand mal seizure, she needed a breathing tube and help stopping the seizure. She's has 2 like this before..a few days in she had 6 hour long back to back seizures with no intervention..can that cause cerebral atrophy? No one will answer me here..it feels like they're covering it up because they dropped the ball. She has a huge volume loss in her brain and is a shell of herself..will she ever get back to her baseline? Or is this our new normal? I need some advice, answers, help..something. I'm so lost.

Comments

Which diagnosis was first

Submitted by just_joe on Thu, 2016-07-14 - 14:01
Which diagnosis was first epilepsy or cerebarl atrophy? Did the doctors tell you what it was?The breathing tube helped her breath. The doctors might heave tried rescue medications to stop the seizures and they do have to wait periods of time before trying another rescue medication. So unless you were right there and saw everything they did you might not have seen the rescue meds being used. Did the doctors at the hospitals know she has cerebral atrophy or did you tell them she has it? When she was diagnosed with both epilepsy and cerebral atrophy did the doctors tell you what they are?The ball might not have been dropped considering epilepsy can't cause cerebral atrophy. However cerebral atrophy might be th cause of her epilepsy.

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