Welcome Chris.....Lee here.  Found this sight myself after an unsatisfactory visit to the University hospital where I was diagnosed over 30 years ago.  I was seeking a re-evaluation due to time passed (30+ years) and life changes for me.  I have received some great support and information from others in the E community here and it has been comforting and enlightening to see how all of us are dealing with E, with life and with living.Sometimes some of us feel like we live in a bit of a bubble.  Many aren't exposed to a lot of others who suffer the same problems (on a daily basis) at least not in the rural area that I am from.  For some this is the only contact we have with others suffering the same problem.I have been blessed to have a husband who has stood by me and helped me when I needed it - even though he doesn't really understand what it is like for me.  I have had a good doctor over the years since my diagnosis who has helped find answers to most of the questions and problems that may have come up.  My meds continue to work and I remain seizure free so I can live a relatively normal lfe.I have been lucky to find the kind of friends to whom E is just a word.  They know I have it but they take their cues from me as to whether to worry about it or not....which is usually not.  Life has been good and I consider myself very priviledged not to have experienced some of the things that others have had to face.Age is changing things and I am beginning to face problems and conditions that I had not anticipated.....Like I said - life was good and I had other things to worry about so E sort of fell in to the background of my concerns.  Now I have to face it again and I find that many of the docs wonder why I am rocking the boat if my seizures are still under control.....I find that very short sighted on their part.My seizures are the result of a head injury over 30 years ago.  At that point in time control was all that the docs cared to accomplish.  It was my emotional insistance to find out "why" that caused a young intern to hang around after I had a huge fit of anger at the specialist.  He asked me what it felt like....that question changed everything.  It was him who discovered the skull fracture that the neuros missed 3 years prior - and the resulting blood clot that had been slowly disolving over time leading to the onset of the seizures and the increasing frequency and intensity.We had no idea what the tissue, where the blood cot had been, would do.  It was odviuosly not funtioning but would it regenerate or deteriorate or just stay that way?  It was left that if things began to change I should return for further evaluation...........but things have remained the same.  Controlled by meds (Dilantin & Mysolin - generic forms of both now) with the levels having been adjusted up and down over the years based on blood levels and side effects.Yes, I remain controlled but the quality of life is not the same anymore and the health issues are not the same either.  My family doctor and me are both becoming greatly frustrated by the attitudes and responces of the specialists we have been dealing with so we are looking at new ones and new facilities that do have an interest beyond control.I hope that your invitation to connect and discuss will bring forth some new subjects and insight to help us all continue to live well - better informed and knowing we are not in this alone.  Thanks for the opportunity!Later...................Lee