Hello First time posting,I have a 4 year old boy that started having SZ. 3 years ago.
He has been drug resistance ,so far we have tried over 10 meds.
he is on lamictal 100mg morning 125mg night , Tileptal 3mL. morning and evening
We have just added Trileptal ,he has been on Trileptal for 2 weeks today and has been SZ. free 10 out of 14 nights ,wich for us is the most control we have ever had with any med.
His Neuro. is recommending the New VNS .
He has a normal MRI ,he is not a candidate for surgery at the moment.
Genentic Testing is normal .
His SZ. are during sleep ,nap, or on awaking .
We have tried Keto diet ,gluten free ect.
We recently started seeing a holistic doctor ,he had a sample of his hair sent too a lab for heavy metal testing ,and my sons test came back with really high levels of ,Mercury ,Arsenic,Cadmium,Aluminum,and a few others .
I did not trust the results so I had testing done ,from another Lab and same results came back high metals again so I believe the results.
I have shared the results with his Neuro. at Childrens Hospital ,and she has been very dismissive saying she doesn't know much about heavy metal toxicity.
The holistic Dr. is recommending ,a natural slow chelating agent, Modified Citrus Pectin, and few minerals ,he says this is the safest way for a young boy with refractory epilepsy to chelate .
Does anyone have any thoughts on this ?
It seems mainstream medicine does not pay much attention too Heavy Metals causing SZ. ,are we too ignore the results .
Any thoughts ?