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Epilepsy and Tourettes syndrome
Mon, 12/23/2019 - 14:16Topic: New to Epilepsy.com
I was just diagnosed with Epilepsy 4 days ago after an eeg. My story begins with an endoscopy gone bad 3 weeks ago and i was internally bleeding. Went to the ER and had a grand mal seizure. I continue to have simple partial seizures when i see strobe lights especially, also looking directly into the sun and lights. Now to throw a little more into the mix i also have Tourettes Syndrome. im not sure how the two are connected but i would think that would have to be. does anyone know that answer
Hi, Thank you for posting, it
Submitted by Anonymous on Mon, 2019-12-23 - 15:34
Hi, Thank you for posting, it sounds like you’ve been through lot. We cannot determine how your epilepsy may or may not be related to Tourette’s syndrome. It’s important that your reviewing your questions and any concerns you have with your healthcare team. It’s also important that you review any changes in seizure types/frequency, side effects, moods, behaviors and symptoms with your doctors to help determine what individual treatment plan is best for you. If you have not already, you may want to consider seeing an epileptologist (epilepsy specialist). For assistance finding a specialist near you, please visit: https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialistOur new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about what epilepsy is, what resources are available, how to make the most of doctors' visits, and how to take control of seizures, seizure first aid & safety. Learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsyIt may be helpful to keep a journal or diary. My Seizure Diary:https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for identifying & tracking seizures, setting reminders,managing medications & side effects, recording medical history, moods, behaviors, triggers ,and other personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. Additionally, you may always to contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline