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PLEASE AND HELP ME UNDERSTAND

Sat, 06/15/2013 - 08:27
Topic: Men With Epilepsy
I am a 26 year old male who has grand mal seizures, i had my first siezure at 16 and since then i have been having  one a month or more but now that I am almost out of my 20s and I feel like i can not find my place in this world i cant hold a job because of my condition and i feel like i am just a burdon to all around me i just dont know what to do not many friends because its hard to get out of the housr because i cant drive and even harder to keep a girlfriend who understands on how to deal with it. I dont know what it is i am at such a loss that i just want to give up and become a shut in . If you have any advice please post

Comments

Re: PLEASE AND HELP ME UNDERSTAND

Submitted by jhuber87 on Sat, 2013-06-15 - 09:18
I was 23 at the time serving in the Marine Corps as the NCOIC of about 30 Marines. I had my first seizure while driving down a San Diego road. I am now 25 and I have had 7 seizures(tonic-clonic) since they have begun. In the Marines they tell you to just "push" and failure only occurs when you let a fellow brother down. We are in a community, a "brotherhood" of people dealing with the; not driving, withdrawn social skills, anxiety of having one in an unfamiliar area, waking in the ambulance convinced that you didn't just seize and they were wrong, family members questioning "how" or "why" they began placing some "blame" on you. Well, the excellent thing derived out of all this misery, is that we are undoubtedly, in this together. I may not know you in the physical sense, but our emotions are more woven together than either of us expect. If you kill yourself, saying that the pain won't go away would be a lie, but the residual pain left behind doesn't outweigh the act itself. I say that because as I stated before, we are brothers in this fight, and you may be my cure, your brain may have the answers we all need answered. I promise you this though bro, when you do die, if it's not self-inflicted, the lasting impression you will leave on at least one person, will all be worth it in the end. Like I said, you might be my cure. Push brother John Huber

Re: PLEASE AND HELP ME UNDERSTAND

Submitted by Frank Lee on Tue, 2013-06-18 - 22:02

Nice response Mr. Huber. Would it be possible to get a little off-track here and ask a different question?

If you are still in San Diego, can I ask what you do there?  I lived in the San Francisco Bay Area for 8 years and would like to move back to the west coast

Can I ask anyone living in San Diego what it is that you do for a living? 

Nice response Mr. Huber. Would it be possible to get a little off-track here and ask a different question?

If you are still in San Diego, can I ask what you do there?  I lived in the San Francisco Bay Area for 8 years and would like to move back to the west coast

Can I ask anyone living in San Diego what it is that you do for a living? 

Re: PLEASE AND HELP ME UNDERSTAND

Submitted by Nerak95 on Sun, 2013-06-16 - 19:17
I'm assuming that you are under the care of a neurologist and on seizure medication. Sometimes, AEDs can affect the quality of life.  Have you shared with your neurologist how you feel?  Even though having one seizure a month may be good control for some people, sometimes switching or adding another AED can prove to be beneficial.  If the current medication that you're on might be the reason why you're feeling so down and out, this is another reason why a different medication might be helpful.
Talk to your doctor and see if making some changes might be in order so you feel better. My daughter is 29 and has retractable seizures. Although she is developmentally disabled, I've seen the differences in her demeanor when she's on different medications.  A switch to a different one might make the world of difference.
If there is a local epilepsy support group in your area, it might be a way of meeting someone that can support you.  Here is the link. http://www.epilepsyfoundation.org/aboutus/Find-an-Affiliate.cfm?CFID=8124831&CFTOKEN=26603061
Good luck!
Karen
I'm assuming that you are under the care of a neurologist and on seizure medication. Sometimes, AEDs can affect the quality of life.  Have you shared with your neurologist how you feel?  Even though having one seizure a month may be good control for some people, sometimes switching or adding another AED can prove to be beneficial.  If the current medication that you're on might be the reason why you're feeling so down and out, this is another reason why a different medication might be helpful.
Talk to your doctor and see if making some changes might be in order so you feel better. My daughter is 29 and has retractable seizures. Although she is developmentally disabled, I've seen the differences in her demeanor when she's on different medications.  A switch to a different one might make the world of difference.
If there is a local epilepsy support group in your area, it might be a way of meeting someone that can support you.  Here is the link. http://www.epilepsyfoundation.org/aboutus/Find-an-Affiliate.cfm?CFID=8124831&CFTOKEN=26603061
Good luck!
Karen

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