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I've had just one seizure (so far)...from my benign 20-mm brain tumor
Wed, 01/07/2015 - 09:31Ok, I'll be 71 in another week. Back about 3 months ago (i.e. in October, 2014), I had
a full seizure...my wife was awoken around 4:30am, to first hearing me calling out in
my sleep (as I've done much before...probably a vivid dream!), but then, suddenly I
was convulsing (I bit a nice gash in my lower lip), etc.
So, she call 911, and had me hauled off to emergency room, where they brought me
around an hour or so later. I was dehydrated (yeak, ok, I had been drinking the nite
before...[ doesn't everyone!? :) ]
It took a couple of months before I had an MRI, which found the 20-mm tumor. A few weeks after
that, I also had an EEG, which they said is totally normal. The MRI also shows just a bit of edema
(swelling) on one side of periphery of the tumor. If I recall correctly, they're now teaching/informing me
that it is (probably) the SWELLING that caused the pressure against my brain, that triggered the
seisure. I say this, because now I just had a second-opinion visit at MassGeneral (Boston), where
they informed me, even if they were to surgically REMOVE the benign tumor, that swelling and
'trauma' to the area of the brain during surgery is also apt to trigger a few more seizures.
They're trying to convince me start taking the Lamictal-XR they have prescribed for me, but
so far I'm having too much fun with this tumor. (I'm starting to suspect that I'm also a bit
bi-polar, and that the Lamictal (which is also used to treat bi-polar) is gonna "dull me down"
so that I'll be more zombie-like. [Hey, like other bi-polar (aka manic/depressive types that I've
heard about), I've self-diagnosed myself as mostly 'manic', and I want to keep my 'highs'! ]
Ok, enough of my babbling...I'm all over the place here.
Maybe someone can re-direct me to where I should posting this info.
As to questions/ideas I have now:
(1) My wife also mentions to me that I often wake up with 'hiccups' in early morning, and I've read
in another epilepsy-conversation some hypothesizing that sometimes hiccups can be mini-seizure-like.
Is the factually substantiated, or just 'urban-legend'?
(2) The lab that did my EEG is also connected with a 'sleep lab' (where they monitor sleep-apnea patients).
I'm wondering if I could get on some 'research program' deal, where they could watch my brain-cyclce
during a night of my sleeping, to gain more insight into the nature of my current condition!?
More later...
the SWELLING that caused the
Submitted by just_joe on Wed, 2015-01-14 - 12:44
the SWELLING that caused the pressure against my brain, that triggered the seisure As for the second oppenion that to is highly possiable. They're trying to convince me start taking the Lamictal-XR they have prescribed for me As for EEG's and sleep. They now have ambulatory EEG's which are generally hooked up and you take it with you and it is runnunf all the time for days. Hospitals also have units that do testing and in those units you are videoed and are on a EEG for days. The neurologist can tell you more about them, I know BAylor, Presbyterian and other hospitals have units used just for testing like this. AKA Epilepsy Monitering Units