Hi. Is it true that my refractory epilepsy can get away permanently when I`m 18, 19, etc?

refractory epilepsy has other terms that can be used. One term is not under control with meds.But what needs to be asked and answered is the definition of controlled.For some people and even neurologists controlled is NO SEIZURES. For others controlled is different. I have gone 3 years without having any seizures. So back then I was controlled COMPLETELY. But then I had a seizure even tho I was taking my meds. I have gone months at a time without any seizures. But then some neurologists could and would say my epilepsy was controlled. I was with the same neurologists group since 1970. I still have a seizure now and then but they last a few seconds. Would I like to be completely seizure free? HELL YESS. But my neurologists and I know that I will never be completely seizure free. You see I know what having tonic clonic seizures is like. I also know what absence seizures is like. I know about all the partial seizures is like. Today I can have a seizure wile standing in front of you and talking and you would know nothing about it. So are those seizures controlled? YES but they are still seizures.At 16 I had been having seizures for about 3-4 years. I have been living with epilepsy and seizures for 50+ years.  Your father wants to see you go thru your life and do everything he did and more. My Dad did. As did my Mom and my brothers and sister. You are no different then the guy living next door. You just happen to have an ailment that can not bee seen. Look at a street corner/ You see all those people waiting to cross it? You see some with glasses, using hearing aids, walkers or cains? Those are the things that can be seen. Do you see the ones with heart ailments, diabetes, Alzheimer's or Parkinson's? No because those are ailments that can not be seen. You just happen to have epilepsy which can't be seen either except for when you have a seizure. Meds today can stop seizures or control them so if you are in one people wouldn't know you had one.

By "get away" do you mean stop?  As a child mother and I were told that many children "outgrow" their seizures.  That was what I was hoping when I turned 16 so I talked to my doctor about getting off of medications.  Dr gave me instructions to get off and I felt wonderful for a couple weeks.  Then I woke up in critical condition with status epilepticus or non-stop seizures.  By the time I was 18 I again enjoyed a lengthy period of no seizures.  I hated the pills so I once again got instructions from my doctor to taper off.  After a few weeks of freedom I was in status again.  I think it is correct to say that you will never outgrow your epilepsy.  There is hope that you may enjoy freedom from seizures, especially with the newer treatments.  But epilepsy is just the name given to persons who are more prone to having seizures and some of us will always be more vulnerable than others.  There is no cure.  Sorry.