Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Medication Issues

Keppra in Vancouver Canada

02/2020 | 3 Comments

Hi all, In a few weeks we are going to move to Canada, Vancouver. Our son is on a Keppra syrop treatment. I found that in Canada Keppra is sold by...
Still having seizures on Lamotrigine

02/2020 | 2 Comments

Hi all, I have been wondering about the effectiveness of lamotrigine and if there are better medications for treating clonic tonic seizures. I have...
Felbamate / Felbatol Headaches

02/2020 | 1 Comments

Question .... I take Lamictal, Trileptal and Fycompa. I'm winding down the Fycompa and adding Felbamate instead -- does anyone get headaches with...
online medication

02/2020 | 1 Comments

Has anyone used PillPack by Amazon? I read some reviews that said the pills didn't come on time. For a person who does not drive getting meds...
New Strange Vision Problems Lamotrigine

02/2020 | 2 Comments

Hi, I was just diagnosed with focal impaired seizures in the temporal lobe after three years of misdiagnosis. I started taking Lamotrigine about a...
Lamictal 400 mg

02/2020 | 1 Comments

As monotherapy, is Lamictal immediate release 400 mg a day (200 mg in the morning and 200 mg at night) too high? I have focal seizure. I do not take...
Emotional numbness - lamotrigine

02/2020 | 1 Comments

I'm wondering about emotional numbness caused by lamotrigine, my wife has been using this drug for 3 years. Last week our dog died, it was her pet, we...
CBD oil and medication

02/2020 | 4 Comments

I currently take 200mg of lamictal day and night; I also take CBD oil 2 droppers day and night. At times I feel a little strange every now and again...
Lost and scared parent- medication issues

01/2020 | 3 Comments

Hello, new to this. My 20 year old son was diagnosed with epilepsy a couple weeks ago. He started Keppra but the side effects are awful. Doctor told...
Lamotrogine Supplier

01/2020 | 3 Comments

I have been taking CADISTA brand lamotrigine for over 10 years, albeit very difficult to get a hold of. I live in FL and have to have my family get it...
acetizolimide discontinued

01/2020 | 3 Comments

Just learned that one of my seizure medications has been discontinued. I’ve been taking this medication for almost 40 years and was not seizure free...
Changing Medication

01/2020 | 1 Comments

Hi All, I'm new to this website, but not new to Epilepsy. I been diagnosed since I was a teenager and have been taking Sodium Valproate for 16 years...
Lamotrigine and kepra

01/2020 | 2 Comments

I am 22 and I take 150mg of lamotrigine and 1000mg kepra day and night and I have recently been put up to 175mg lamotrigine day and night as well as...
Keppra

01/2020 | 3 Comments

Hi my son is 3 nearly 4 and has been on Keppra for 18 months. Since then he has had behavioural and anger issues. His speech also completely stopped...
Zonisamide Experience

01/2020 | 3 Comments

Hi, I understand that everyone reacts differently to the medication he/she is taking but I would like to know from your own experience if you have the...
Ethosuximide (Zarontin)

01/2020 | 1 Comments

Hey everyone, My son was diagnosed with absence seizures a few months ago. He's 11. He is doing well on the ethosuximide but I had a question about...
Can't get a prescription

01/2020 | 1 Comments

Going nuts trying to get my prescription of Lacosamide refilled. My neuro retired. I have an appointment with a new neuro on Feb 4th. New neuro won't...
Lacosamide and muscle weakness

01/2020 | 1 Comments

I have been on Lacosamide for about 4 weeks and started experiencing severe muscle wrakness and shortness of breath about 2 hours after taking. I have...
UGH!

01/2020 | 2 Comments

Good morning! I am at my wits in so Im reaching out to others, thank technology! I noticed changes with my daughter when she was 7. Being in medical I...

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