Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Need advice regarding Depakene
Thu, 08/11/2005 - 07:05Comments
RE: 12 year old son having episodes / frustration with doctors
Submitted by gods_girl on Fri, 2005-08-12 - 22:13
Hi,
My name is Maddie and I am 11 years old. I was just diagnosed with complex partial seizures also. I tried trileptal also ,but it made me really sick so I stopped taking it. i'm not taking anything right now. I'm waiting for my next doctor's appt. in two weeks. If your son would like to e-mail I would be happy to share experiences with him. None of my friends quite understand what I'm going through and it would nice to talk to someone who understands.
Thanks and Good Luck,
P.S. is trileptal working? My e-mail is maddiemily@academicplanet.com
Maddie
Hi,
My name is Maddie and I am 11 years old. I was just diagnosed with complex partial seizures also. I tried trileptal also ,but it made me really sick so I stopped taking it. i'm not taking anything right now. I'm waiting for my next doctor's appt. in two weeks. If your son would like to e-mail I would be happy to share experiences with him. None of my friends quite understand what I'm going through and it would nice to talk to someone who understands.
Thanks and Good Luck,
P.S. is trileptal working? My e-mail is maddiemily@academicplanet.com
Maddie
RE: 12 year old son having episodes / frustration with doctors
Submitted by Adam on Sat, 2005-08-13 - 11:24
You certainly have your hands full! I don't know what any of that means and cannot help you there. I will tell you one thing I have learned and that is doctors in general don't like use "there" time to discuss details. I suggest you check the web thoroughly for correct information so you can be intelligent and most of all "forceful" in you desire for answers. They like to walk out of room 'cause patients won't leave fast enough.
Be sure and realize there time is limited and write everything down before you see whoever. Be concise and ask the "right" questions. You'll
get better results.
Unfortunately, I have learned too late that I did not completely understand what the doctor has said and been in tune to his "attitude." until after the meeting....too late!!!!!
So far I am impressed with even the knowledge you have given , BUT find all and all it is extremely confusing!
Good luck and be strong.
Adam
You certainly have your hands full! I don't know what any of that means and cannot help you there. I will tell you one thing I have learned and that is doctors in general don't like use "there" time to discuss details. I suggest you check the web thoroughly for correct information so you can be intelligent and most of all "forceful" in you desire for answers. They like to walk out of room 'cause patients won't leave fast enough.
Be sure and realize there time is limited and write everything down before you see whoever. Be concise and ask the "right" questions. You'll
get better results.
Unfortunately, I have learned too late that I did not completely understand what the doctor has said and been in tune to his "attitude." until after the meeting....too late!!!!!
So far I am impressed with even the knowledge you have given , BUT find all and all it is extremely confusing!
Good luck and be strong.
Adam
RE: Need advice regarding Depakene
Submitted by mommy2kyra on Sun, 2005-08-14 - 13:41
Hi Krisz,
I don't have any children with E *knock on wood*, so I can't give advice on what you can do. But I did want to lend my support. I'd definitely agree that your son should be seeing a pediatric neurologist. He should have tests (MRI, EEG's, at least) in order to get a full picture of what's happening. Your son may try the ketogenic diet, in order to gain seizure control (and avoid med side effects). Or, he may stay on meds that cause troubles like irritability and sleepiness. Hopefully, you will get a decent neuro who is concerned for both your son's seizure control and quality of life.
On the other issue (you hubby being unsupportive), that's more complicated. I would make a genuine effort to sit down with hubby and tell him how I feel. I would try to be as non-confrontational and unassuming as possible. But, I would tell him that we need to approach this as a team. And that I need him to *show* me that he cares about us (as a family), by being there during these important times. You may not be a doctor, but you are a mommy. You've given everything of yourself into your son, physically and emotionally, and your thoughts and feelings should be validated.
Good luck to your family...I hope that your son is back to his old self soon!
Heather ;)
Hi Krisz,
I don't have any children with E *knock on wood*, so I can't give advice on what you can do. But I did want to lend my support. I'd definitely agree that your son should be seeing a pediatric neurologist. He should have tests (MRI, EEG's, at least) in order to get a full picture of what's happening. Your son may try the ketogenic diet, in order to gain seizure control (and avoid med side effects). Or, he may stay on meds that cause troubles like irritability and sleepiness. Hopefully, you will get a decent neuro who is concerned for both your son's seizure control and quality of life.
On the other issue (you hubby being unsupportive), that's more complicated. I would make a genuine effort to sit down with hubby and tell him how I feel. I would try to be as non-confrontational and unassuming as possible. But, I would tell him that we need to approach this as a team. And that I need him to *show* me that he cares about us (as a family), by being there during these important times. You may not be a doctor, but you are a mommy. You've given everything of yourself into your son, physically and emotionally, and your thoughts and feelings should be validated.
Good luck to your family...I hope that your son is back to his old self soon!
Heather ;)