Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Klonopin withdrawal induced status epilepticus
Wed, 07/16/2014 - 00:19Don't know the proper way to directly respond to 'bread' about Klonopin withdrawal but yes, I had status epilepticus seizures for days while home alone from 'cold turkey' withdrawal. Mental Healthcare workers told me it would be just 'fine' to do that so I did. It was the worst nightmare I've ever been through. Withdraw slowly over very long time to diminish brain damage, seizures and hallucinations only to name a few of the 50 severe withdrawal symptoms you will most likely have. Please read the Ashton Manual to educate yourself. What I had to endure was nothing short of death. Please be careful and NO, there are no Doctors out there who are educated enough to help you with withdrawals let alone a recovery. After ONE year I am no where near healed and I have severe memory & cognitive impairment from that Klonopin withdrawal. I have no hope that I will ever fully recover.
Klonopin is used as a control
Submitted by just_joe on Wed, 2014-07-16 - 12:43
Klonopin is used as a control substance for people with epilepsy. If the mental health doctors put you on it they should know you need to be weened off of it. I do know what status epilepticus is and wht it is like when you come out of it. When I had it there was no 911 and having 40 convulsive seizures an hour then the only thing I could be taken to the hospital in was a station wagon. I started it around 10pm and was loaded into our neighbors wagon around 5 am, Once I was in the ER I was told that they got me out of it only for me to go back into it. All I know is I came too 3 days later. It did take time to gewt everything back. It took weeks in the hospital only to get back home and work at getting everything together. As for short of death welllllllllllll the doctors had done everything they could and they didn't know what would happen to me. Those are words that came from the head neurologist at the hospital. He stated they gave up since they couldn't do anymore for me. He followed that by Your mother never gave up and she had been there by my bed almost all the time I was in the coma. So I can deffinately say I would not be here if it weren't for a nothers prayer. I do hope you get things streightened out I have severe memory & cognitive impairment Best wishes and please come back and let us know how things are going Joe