Community Forum Archive

Does the acne EVER stop after the topamax does?

Mon, 03/08/2010 - 19:25
I am wondering how long after stopping topamax does it take for the acne to stop? I was on it for about a year and for the first several months I was on it, I did not have any complaints. In fact, I was pleased that I lost about 25 pounds in those first few months. I had gained a lot of weight from taking cymbalta and was eating all the time, so my doctor also thought that topamax would help with that...but the main reason I had to start taking it was because at that time, I had a job which I was very unhappy with and was stressed out to the point that I had constant migraines, like everyday...so that went on for a month straight until I couldn't take it anymore and I went to the doctor asking for help. The topamax stopped my headaches pretty soon after I began taking it, and I think that it solved whatever problem I may have had with migraines...HOWEVER, in August I started noticing a little bit of acne, but I really didn't think that it was related to the topamax, so I continued taking it and when I went to my regular doctor, I asked her what I could do about it. I was prescribed differin gel, but got no results. I tried buying products from skintactix, which is an acne control system that is made of all natural ingredients...no benzoyl peroxide...I used this system years ago and it made my skin look a lot better. I used to have acne when I was in high school and was so embarrassed about it. However, in recent years, my skin had cleared up sooo nicely and I didn't even have to wear a lot of foundation. I did get a bump here and there, but for the most part I considered myself to be out of the woods as far as acne went. That is why it concerned me so much when I noticed my skin was breaking out. By November/December, I had this weird acne/rash on my forehead...very sore and swollen bumps, which were like sores and I could not even cover it with make up because it just made me look deformed. I could not even touch or wash my face without it hurting. I also noticed that my hair was falling out and that was not normal either. I had read that hair loss was a possible side effect of topamax, so I got worried. I went to the doctor again and she told me it was a bacterial infection and gave me tetracycline...I waited and waited for that to kick in, but I got no results. I had to go back AGAIN and she acted shocked that it hadn't cleared up. I tried to tell her about my hair loss and she just shrugged it off and said that it was probably caused because I was worried about my skin!!! I have never had any sort of history of hair loss. In my life I have had anxiety and depression, but even during those times, my hair was healthy!! She told me that I had impetigo and sent me home with clindamycin pills combined with septra pills and bactroban cream. I took that for 9 days and was not getting results, other than what I thought to be an upset stomach, so I gave up on those things. Not to mention, I knew in the back of my mind that it was not impetigo because it was only on my face and over the months I had been suffering with it, it never spread and my husband never got it either. I was blaming everything I could think of...the water, the washing detergent, perhaps the house was not as clean as it should have been?? So then I developed a fear of germs and started washing everything and scrubbing all the surfaces in the bathroom and spraying lysol on everything. I was thinking there were germs hiding somewhere that I did not know about. It also caused me to take my worry and anger out on my husband since this is his house (he lived here before we got married and before I moved in) and that honestly put a strain on our relationship, especially since the hair loss and acne were causing me to be ashamed of myself and lowered my self-confidence. I felt like I was slipping into depression again and I did not want to leave the house and go out in public because it was too hard to cover the acne. It would still show through, even underneath my Clinique makeup, which I have been using for years, so I also ruled that out as a cause. Eventually, I figured out that something else was causing it and the one thing that had been present throughout it was the topamax. I began doing research and found out that other people experienced these problems. My doctor referred me to a dermatologist, but all he did was prescribe medications that I was allergic to!! I cannot take a lot of antibiotics due to allergic reaction, and he was just trying to treat someone who could tolerate them all! So I kept wasting my time and money and eventually gave up on him. So I decided to go off the topamax, even though when things were really out of hand, my doctor still wanted to keep me on it. I guess she did not want my headaches to come back, and I understand that, but she could see how bad I looked and how worried I was and I think she should have taken that into consideration. I started tapering off over a period of about a month and when I cut my dose in half, the swelling and sores on my forehead stopped, although I am left with redness/discoloration from where I had so many of them...the acne on my cheeks and jawline continued, though, and now I have been off it for almost a week. I am still breaking out on my cheeks, jawline, and a little curving underneath to my neck. During the time I was tapering, I experienced nightmares, sweaty feet and anxiety. I felt like I was going to have a panic attack when I was out in public. I still have vivid and sometimes bad dreams even now that I am off it. I have had to take matters into my own hands and look for ways to clear up this acne because my doctor told me that basically there isn't an antibiotic she can give me since I am allergic to so many. I had my blood tested because I wanted to know if there was something wrong that we weren't seeing, but my results came back fine. I have been using Hibiclens antimicrobial soap when I wash my face and letting it sit there for a minute or 2, then rubbing one of those round cotton pads on it. I had read good reviews that it would help the acne. I also bought dark angels charcoal licorice scrub from lush handmade cosmetics and I use that about once a day or whenever I feel like it and let that dry and then wash it off. The hibiclens smooths my face a bit, but I still have so much redness that it looks like someone put a mask on my face and there are a lot of scars and it looks like I have tiny holes in my face...I guess those are enlarged pores that I got throughout this experience. Now I am a bit more able to cover it with make up, but I've noticed if I wear make up for several days in a row, it irritates the acne, expecially if I put concealer on underneath the regular make up. The last time I went to the doctor, she was still acting like she doesn't think it's connected to the topamax...she claimed that she looked in her book and did not see those side effects, even though the dermatologist I went to looked in his book and both hair loss and acne were possible adverse effects. That was the only helpful thing the dermatologist did was to confirm what I thought to be true, and tell me that he thought it was being caused by the topamax and that he thought I should stop taking it. The last time I saw my regular doctor, I think she was at a loss and did not know what to do for me, so she gave me retin-a cream and told me she thought a birth control pill is what I needed, but they also have a lot of side effects and the last time she tried to put me on one, it was tri-sprintec which I cannot take because it gives me a terrible headache within an hour or 2 of taking it. So now she prescribed nortrel 777, but I don't think I am going to take it. I am just tired of all the b/s and the pills and doctors getting stuff wrong. I tried to wear a wig since my hair has thinned and I don't feel that it looks very good, but I think that caused dandruff and my head was itching really bad for several days and I noticed that I had little red bumps on my scalp. I bought some folicure shampoo & conditioner and some Hask dandruff/scalp treatment and have been using that for a couple of days and immediately my hair and scalp felt better and has not been itching as much. I had heard that people who take topamax also had scalp problems, so I'm not sure if that caused it or if it was the wig I wore, but anyway, the last time I showered I don't think I lost as much hair as I had been, so hopefully that is improving. I wish I could say the same for the acne, but my cheeks continue to get new bumps and I just want to know how long does it usually take for topamax-induced acne to clear up after stopping the medication? I hope it will get better soon, otherwise there won't be any hope for my face because I will have so many scars. I've already got a lot, but I am afraid I am going to get more if it does not stop and I feel helpless. I don't know what to do for myself, other than what I am already doing. I've actually got a mint julep mask on my face right now, but nothing I do seems to be the answer. I am so tired of being embarrassed and trying to avoid going places and seeing people because of this acne. I just want the old me back, minus the migraines I used to have. I would even take the extra pounds back that I had before topamax, if my skin would just get back to looking the way it did before...but I know that the damage has already been done and it is going to take a long time for these scars to heal. I have not even gotten to enjoy being a newly-wed because I have been 'sick' this whole time and have been so depressed that my husband and I have been put under stress. He has not always been able to understand it, but he has supported me through this, even though I know that I took my worry out on him. My emotions changed too and I became a much colder person, not wanting to hug and kiss him like I used to or even say I love you as much as I did before. I do not feel like the same person at all and I just want the old me back!!!!

Comments

Re: Does the acne EVER stop after the topamax does?

Submitted by sassymuffin on Wed, 2010-09-29 - 03:48

Hi just wanted to let you know my hair fell out on Tegretol and Topamax, I stopped all medication in January and have been trying something natural, it has not worked. I have also used Epilem, my hair fell out with that too. They wanted me to try Keppra back in May but im sure I tried that too 5 years ago and stopped it also because of hairloss. A recent doctor has told me about Cymbalta which is for depression, and apparently Epilepsy, I am researching it as you cant trust these doctors.

My epilepsy started approx 6 or more years ago after a blow to the head. I am still trying to find the right medication that won't make my hair fall out. That was the only visual sideaffect I had, but i am sure there are many other side affects that could have been taking place without me knowing. From what I have read they are not good drugs. I have not been able to drive which is another bad affect of refusing to take medication. The Neuroligist told me hairloss was not something he had seen which was a lot of BS, they have to say that as it is their bread and butter, their new Mercedes, their world trips and holiday houses. I am afraid I dont trust any doctors any more.

I am trying to find out if anybody has used this CYMBALTA for epilepsy ? and if they have had HAIRLOSS with it?

 

Cheers Sassy 

Hi just wanted to let you know my hair fell out on Tegretol and Topamax, I stopped all medication in January and have been trying something natural, it has not worked. I have also used Epilem, my hair fell out with that too. They wanted me to try Keppra back in May but im sure I tried that too 5 years ago and stopped it also because of hairloss. A recent doctor has told me about Cymbalta which is for depression, and apparently Epilepsy, I am researching it as you cant trust these doctors.

My epilepsy started approx 6 or more years ago after a blow to the head. I am still trying to find the right medication that won't make my hair fall out. That was the only visual sideaffect I had, but i am sure there are many other side affects that could have been taking place without me knowing. From what I have read they are not good drugs. I have not been able to drive which is another bad affect of refusing to take medication. The Neuroligist told me hairloss was not something he had seen which was a lot of BS, they have to say that as it is their bread and butter, their new Mercedes, their world trips and holiday houses. I am afraid I dont trust any doctors any more.

I am trying to find out if anybody has used this CYMBALTA for epilepsy ? and if they have had HAIRLOSS with it?

 

Cheers Sassy 

The rash could be stevens

Submitted by heather135 on Thu, 2019-02-28 - 18:26
The rash could be stevens-johnson syndrome, which a rare and sometimes fatal syndrome.  Did your doc not consider that?  Once I broke out in a rash my dr took me off it right away.  I am surprised your dermatologist didn't consider it.  My arms and legs still have blisters and spots.  Best of luck to you.  

I am in the same situation.

Submitted by capricious999 on Mon, 2019-05-27 - 17:50
I am in the same situation. Someone help me. My social life got destroyed. 

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