Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Youth

staying home

02/2007 | 2 Comments

I am new to this sight. My son is 13 1/2 and started having seizures in September 2005. His second episode was in December and a third in February...
Calm before the storm?

02/2007 | 1 Comments

My son was just officially diagnosed with CAE last week. He was having at least 9 seizures at home, don't know how many at school, a day. Now since...
Just back from 2nd video EEG

01/2007 | 0 Comments

Well, We just got home from the hospital an hour away where Cody had his second VEEG. The 1st one was last March and was totally unhelpful. He sat for...
Glucose test

01/2007 | 0 Comments

Is there any chance my 29mo old can be having seizures due to low/high sugar? I am being told it is unlikly but I want everything to be checked.
My daughter just starting having seizures

01/2007 | 5 Comments

My daughter will be 2 1/2 next month and has had two seizures-that we know of. She had her first one in sept and they did a EEG and it was normal. We...
Shelbie's seizures increased

01/2007 | 1 Comments

Hi! Some of you may have already read about my daughter, Shelbie. She had a video EEG in Dec. Since that time the doctor changed her medicine to...
AMITRIPTYLIN

01/2007 | 11 Comments

hi every one do you know this med AMITRIPTYLIN treat for wat? i have bad headaches and numb , tingling my foot and ams my doc neo. just gave me this i...
Results from Video EEG

01/2007 | 2 Comments

Hi! My 12 y daughter was dx with epilepsy in Aug. She has had 4 gran mal seizures with 5-6 daily small siezures (twitches). She had a video EEG on 12...
BABY SEIZURES

01/2007 | 1 Comments

HI!! I AM NEW TO THIS SITE, AND WAS TOLD ABOUT IT FROM A WONDERFUL FAMILY AT CHILDREN'S HOSPITAL WHERE WE MET. WELL MY STORY: MY HEALTHY NIECE(3 WEEKS...
help would be very much appreciated

01/2007 | 2 Comments

hi, im currently writing a book and my protagonist is a young boy who suffers from absense seizures. i have researched as much as i could get from the...
Starting the new year with knowlege

01/2007 | 0 Comments

I would like to invite everyone to start the new year off with knowledge and power. There is a new non-profit out there whose mission is to speak up...
Things they miss out on

01/2007 | 8 Comments

Hello, I just discovered this site tonight. My son is 15 and has had epilepsy since he was 8. He is being evaluated for possible surgery in Augusta...
Depakote

01/2007 | 5 Comments

Hi! My daughter had her video EEG last week. I will know the results this coming Friday. The doctor decided to put her on depakote and take her off...
Increased Seizures during the Holidays?

12/2006 | 2 Comments

This year we really noticed an increase with our son's seizure activity leading up to the Holidays. Can someone tell me if they to have noticed this...
Can CPS progress to Grand Mal type?

12/2006 | 3 Comments

Son 11 has now been treated for 5 yrs for CPS. A year ago he was on a ride at a fair and he had a very significant CPS on a ride. After describing it...
Fighting Together

12/2006 | 2 Comments

I know as a 14 year old, how hard it can be to not be able to do such things as sleeping over at friends houses, riding bikes and going on school...
landau kleffner syndrome

12/2006 | 0 Comments

To all who read this blog: I have a nephew who is 5 years old. He was speaking until right before his 3rd birthday he stopped speaking. We all thought...
Need some advice

12/2006 | 4 Comments

Hi! My daughter Shelbie has had a few seizures since Aug. Her last one was 2 weeks ago. Before she had this seizure she was playing her gameboy in the...

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