Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
VNS and LGS
Tue, 07/26/2016 - 00:50Topic: Living With Epilepsy - Youth
My 4yo has been having seizures for the last 2 years. We started with a Grand Mal and a week and half later she had another one. She has now had absent, drops, parcial, myocloninc. we are on onfi, banzel, and felbamate as well as 4:1 Keto. we are still having anywhere from 5-10 seizures a day, as well lots of backsliding in her development. Our next step looks to be The VNS and i was just wondering if there is anyone out there who has done the VNS with an LGS patient and what their thoughts on it were.
I'm so sorry y'all are going
Submitted by pa_lele@yahoo.com on Mon, 2016-10-10 - 18:41
I'm so sorry y'all are going through this. My daughter has been seizure free for 8 months. I would love to talk to y'all about what we found that worked for her. Please feel free to message me on Facebook