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My story on my epilepsy

Mon, 08/08/2016 - 10:10
It's been 2 almost 3 years since I was diagnosed with Coxsackie virus and meningitis and I will tell yourself it was the hardest thing that could ever happen to me. I was unable to walk from the spinal tap that they performed on me and wasn't able to keep food down for at least for 4 days. I had these excruciating headaches that were worse then migraines and would make me vomit , so my parents took me to childrens hospital in L.A where I was hospitalized for a month. After coming out from the hospital I still had the same symptoms but developed memory loss and feeling electrical sharp pains in any side of my head. With what side I had the electrical sharp pain I would have face paralyzation. About a month later I also developed a "Blank stare" as they would describe it to me and I wouldn't remember anything from that moment. My parents took me to a neurologist where they performed a "EGG" on me to check my brain waves and the results came out to be that I was having epilepsy seizures .They called it "absences seizures "where I would blank out and not remember anything. My neurologist has me taking "lamotrigine"where I take 8 pills a day . I was a freshman in high school when this happened and I am now a junior still living with this, my experience with this is something that I wouldn't wish anybody else to have. My grades have went down the drain, my teachers don't want to work with me because Im unable to contain the correct information tha I need to remember. My friends have grown tired of needing to remind me about things but I'm also blessed that my true friends except me for who I am now and make brains games to help me memorize different things. My life has been changed with a blink of an eye and I hope and pray that everyone that can relate to me about this that you can be strong and believe that there is hope and beauty behind all of this . I'm new to this site but I believe that we are family that will get through this together! God Bless you all .

Comments

I kinda understand what your

Submitted by Steve O from PA on Wed, 2016-08-10 - 00:01
I kinda understand what your going threw.I started having seizures while a senior in highschool in 2002 due to a really bad bicycle accident. At that age I thought i was to cool to wear a helmet and thought i was indestructible...lol.My seizure dissorder has really affected my memory which in turn caused me to isolate myself from public cause I always ran into old friends that I couldn't remember..it's so embarrassing to me when people tell me story's about how I did this or that around them and I don't remember them or it at all.Still to this day I am told story's from friends that I don't recollect.Sorry if this sounds like a horror story but this is my first time on a epilepsy forum and am just wondering if I'm the only person with this issue. I don't have any friends with epilepsy that understand what it's like having to be told your good and bad times in life.On a positive note though I have been  seizure free for the past couple years but still struggle with the whole memory loss issue and would love to get some tips on how to better this issue.I'm currently on 400mg of dialantin n 3000mg of kepra everyday.Sometimes I wonder if I'm over medicated n that could be playing a role in it but I got a well known neurologist in my area that got me seizure free finally after what feels like a life time. Any suggestions would greatly be appreciated.

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