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Losing Control- Please Help!
Tue, 05/24/2016 - 00:26Topic: Living With Epilepsy - Youth
Hi everyone! So, I'm currently taking lamotrigine (50 mg 2x a day), Depakote (750 mg a day), and Keppra (1500 mg a day) for JME. I've been experiencing what I think is drug-induced tremors? Anyways, these tremors are supposedly brought on by the Depakote, which is why I'm now on Keppra as well. Over the last year ish, they've gotten progressively worse. I really, really want to be in my school's marching band next year, but I can't do it if I'm afraid that my legs might just start shaking in the middle of a show or something. Does anyone know any sort of therapies/ special exercises/type of medicine etc that could help? These tremors have made it hard to write, draw, run, etc. I just so badly want to be able to have that thrill that marching band used to give me up until I couldn't do it anymore. I'm sick of 'not being able'. Please help.
Comments
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Submitted by just_joe on Sat, 2016-05-28 - 19:34
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OK you want to be in the
Submitted by just_joe on Thu, 2016-05-26 - 17:26
OK you want to be in the schools marching band but you are having more tremors then you used to.Thy have gotten worse in the last year. The neurologist added keppra to stop the tremors. But they haven't stopped.When I was in school and wanted to be in sports I told my parents. Hey the docs talk to them because I was a minor. Just like you are. So first you need to be letting your parents know you are having more seizures or tremors then oyu had before. If you had keppra added and there has been no reduction od the other medications then you may be taking more medication then the ammount needed which can also cause seizures.Your mother or father neds to call the neurologist and ask why you having more seizures since the keppra was to have stopped them and rather then stopping them they increased in number. They need to let you ask questions or ask them for you and refer the answers to you so you can ask another question.The only way I have gotten results is by asking questionsIs this teh best medication for my seizures?Does my dosage need to be raised or lowered to get better control?We added another medication and I am having mor seizures. Do me need to decrease one of the dosages?Why are the seizures keeping me from doing some of the things I want to do or need to do?For every question the neurologists asked me I had at least one for them.I hope this helps and you get your seizures controlled better and you get in the marching band.JoeOh and Parents wouldn't let me play football. I did get on the team as manager tho. So look at all th different angles to see if there is any other place you might fit on the band.