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How do I explain to people including my loved ones that I have epilepsy
Sat, 11/11/2017 - 23:33Topic: Living With Epilepsy - Youth
Hello. I recently found out that I have epilepsy. The doctors still don’t know much like my triggers. All we know is that they are Grand Mal siezures. I have no memory 2 hours before I have a siezure. When my family and friends ask me all these questions like how does it feel or does it hurt when I have no idea. I’m still trying to rap my head around me having seizures. How do I explain to them that I have no idea what it’s like and that it’s scares me to even think about it?
Go ahead and tell them. I'm
Submitted by Megan_K21 on Mon, 2017-11-20 - 15:34
Go ahead and tell them. I'm an adult now, been diagnosed since I was 8 and I still have a hard time explaining it. I tell them after my seizure, I don't remember what happened before, during, and for me, after. It takes time for me to start remembering, but that period before, during and right after are gone. Feel free to tell your friends that you're still learning about it. There's nothing wrong with being honest and you shouldn't have to lie to friends and family. I like to explain it as a black out. There is nothing there. No memory, I don't know what it feels like, what I was thinking or doing. Nothing. If they try to ask why, just try to explain what you do know.