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Abnormal result because approaching puberty?
Tue, 12/13/2005 - 16:06Topic: Living With Epilepsy - Youth
Am seeing doctor tommorrow about results of daughters sleep deprived eeg. Been given a pre meeting info by nurse that it said it was abnormal but this could be because of her age (11 - so approaching puberty)
The nurse said she didnt know if Aimee would be put on medication or not - if not wont she keep having seizures?
Why do they not medicate some people?
What questions do I need to remember to ask the doctor tomorrow?
Comments
Re: Re: Abnormal result because approaching puberty?
Submitted by guitarmomma on Thu, 2005-12-15 - 08:14
How did the appointment go at the neurologist? Hoping you got answers. G
Re: Re: Re: Abnormal result because approaching puberty?
Submitted by aimees mum on Thu, 2005-12-15 - 16:19
They think it is probably Benign Rolandic Epilepsy.
Because Aimee has diabetes too, then they want to see what her blood sugar is at 3 - 4 am twice a week for 2 weeks to make sure she is not having seizures because of low blood sugar, or if she has another after her breakfast (has had one after breakfast, all rest as getting up) then they want to start her on sodium valproate. But they want to be sure before starting on meds.She has had them about weekly for a few weeks, but I have read that they go in clusters so presumably she could have none for ages, then a lot together?
Unfortunately she is hospital at the moment with some sort of viral infection which is messing up her diabetic control and she has been on and off a drip this week - got a bit better and they take her off it and say we can go home the next day, then in the night she gets worse, and ended up on the drip again.
Testing for an immunoglobulin deficiency causing frequent illnesses(grrr!!!) - my other 3 kids are totally healthy but poor old Aimee has it all :(
Re: Abnormal result because approaching puberty?
Submitted by guitarmomma on Tue, 2005-12-13 - 21:13
Aimees mum, I am so sorry your daughter is having seizures! So confusing to have some info from the nurse but not enough. I hope the neuro will completely explain it all. there are some seizures they do not medicate for like benign rolandic epilepsy and benign occipital if the seizures do not interfere with daytime activities. These go away during puberty and it is often felt it is ok not to treat. I have not heard of being near puberty causing an abnormal EEG. I am not a doctor though, but have had 2 teens needing EEGs for seizures. I would write out your questions for the neuro. I find it helpful to write down his responses as well. I hope he will clearly answer your worries. >what exactly did hte EEG indicate? >how will this affect my daughter? >what is the best course of treatment if this were your child? >the nurse indicated it was an abnormal EEG due to puberty, is this possible? >are there anythings I need to be aware of regarding keeping her safe? Restrictions? Hope this helps! G