5 month old son diagnosed with otahara syndrome

Mayo Clinic, John Hopkins (Baltimore) both have good reputations. You are in good hands at NYU though. Your med protocol is appropriate.&nbsp;Because of age, other treatments may not be available now, but will be as he gets older. Other treatment include:<strong>Steroid therapy&nbsp;</strong>with ACTH or prednisone has been helpful in some children.<strong>Epilepsy surgery&nbsp;</strong>may be an option in children with seizures starting in one area or involving one side of the brain. In these situations, a focal resection (removal of one area) or a hemispherectomy (removing most of one side of the brain) may be considered.<strong>Devices or dietary therapy:&nbsp;</strong>A vagus nerve stimulator or the ketogenic diet may also be considered when medicines don’t work well.<strong>Correcting metabolic problems:&nbsp;</strong>Sometimes a metabolic disorder that affects how the brain works may lead to OS. While these currently can’t be reversed, sometimes treating the underlying disorder can help.