Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Living with Epilepsy
Thu, 03/10/2016 - 05:42Hello to all my epileptic buddies
This site has far too many negative posts-some from people who are misinformed about Epilepsy and others from who just seem to want to wallow in self-pity because they have it. This paints the wrong picture of Epilepsy overall and adds to the misconceptions about it.
If you are epileptic and agree please provide others with positive post-like how you CAN deal with it
I've had various seizures for over 45 years (now daily) but know they will pass and will not kill me. Of course I don't drive so I take busses (met some very interesting people as a result. I've been on all kinds of meds but I know my body will adapt in time to the side effects as anyone on any drug should. I get pain but other conditions cause worse. Most geniuses in history have had epilepsy-don't be ashamed because you do. The options for treatment are ever-expanding. I'm in the midst of trying a new drug and could care less about side effect as I said I know they will pass and I am happy that this is available. If a drug is helping you why would you go off it? "Don't Worry Be Happy"
Nice post.. I try to answer
Submitted by just_joe on Thu, 2016-03-10 - 12:12
Nice post.. I try to answer posts or questions to help those who have asked it. I use my experiences as reference. The names and kinds of epilepsy and seizures has changes. But advances have been made. It was a pleasure to have read your post.People today have little idea of what we went thru. I have been living and dealing with epilepsy for 50+ years.Thank you very muchJoe