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I need a shoulder...

Wed, 09/13/2006 - 16:14
Ended up in the ER again. Ongoing seizures. About an hour and a half this time. Can't drive, can't drink. I'm afraid it's gonna happen again...luckily, my friend was over when it happened, cause I couldn't walk, talk, or anything the whole time. Had to get an ambulance... This sucks. Does everyone else have a fast heart rate and hyperventilation when they have simple partials??? :-( Sam

Comments

Re: I need a shoulder...

Submitted by Bloodyrose on Wed, 2006-09-13 - 16:31
hey Sam! I don't know you, but I do sympathise. Sometimes during SPS I get a racing heart - usually in the morning. I have been in hospital before with Tonic Clonic seizures, and also been in with CPS where I couldn't breathe properly for a really long time. I hope everything works out for you. Stay strong. *hugs*

Re: I need a shoulder...

Submitted by bazeve1 on Wed, 2006-09-13 - 17:59
Hi Sam, Very sorry you are going through this. I know the feeling though. I have had simple partial for years. It is very difficult and "Unfun!" My heart definately races and I have to try to think and remind myself that this is not a new thing.Once it sets in, it is difficult to cope with. Vision gets burred, my balance goes off and walking-well-what can a say, a step at a time. Each time, it certainly feels new though and I have been going through this since I was very young-now in my 40's. Much of the time, I go about my business/life/work/ and then get an aura and slammed into some kind of reality that is awful. I recall before I knew it was E, I was in my 20's and it hit me driving. I went to an emergency room. First time ever in there and a male nurse told me that I was causing it-that I was going to die alone and no one cared. He thought (I guess) that I wanted attention. Now, he was pathetic. At the time, I was a jewelry designer and was making pieces for all over the country. Crazy world we live in! I keep a cell phone on me all of the time, just in case:) I keep music on that makes me smile:) I just do the best I can:) It is something I happen to have, but, it is not who I am. Hang in there:) B

Re: I need a shoulder...

Submitted by wflisa on Wed, 2006-09-13 - 19:53
Hi Sam, I can identify also. So here is another hug :) I don't know about simple partials as almost all of my seizures have been grand mals. The auras, unlike the seizures, are almost constant. Except for the two seizures in two different hospitals, I have only had five major seizures. And those all since November 2005. Earlier this year, about early April, I began having these auras and / or some other kind of seizures during the night or early in the morning. It became obvious that with the aura came fast heart rate, shaking all over, hyperventilating, sometimes chills. Just to mention a few. As some of my brain was still working, I figured out some ways to slow my heart rate, stop the hyperventilating, and to just slow everything down to the point where the aura just went away. This can take up to 75 minutes, but it works. It also helps to have a mug (not a glass-you don't want something near to break) of water and half of your anti-convulsant next to the bed! I have lost count of the number of ambulance rides, trips to the ER, etc. that I have had. Yes, this truly sucks. Hugs again Sam :) Lisa

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