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Feeling down and need advice
Wed, 03/15/2017 - 18:39Lately I've been feeling really down. I'm always afraid of having a seizure in public and humiliating myself. I tend to scream and moan with my eyes wide open so I look like a complete freak and scare people to death. Its the most embarrassing thing ever. The side effects of my medicine have also gotten really bad. I've developed acne (I'm 26) and I have no appetite to the point where it's a battle every day just to eat at all. This makes me really tired and weak and I am really self conscious of being too skinny. Everyone feels the need to mention how skinny I am and tell me how great it is that I don't get hungry. If I don't eat enough, which is usually always, I get extremely nauseous and dizzy from the medicine and I get double vision and can't really walk for about an hour after I've taken it. Ive become really depressed and anxious and I'm scared to even leave the house anymore or talk to people. I've lost all my friends. Its a huge struggle to even go to work. I've tried to stay positive since I was diagnosed about 5 years ago but I feel like I'm breaking down and have no one to talk to. Does anyone have any advice for someone like me? I need some inspiration.
Comments
Hey alyada, it's hard to say
Submitted by MarieA on Thu, 2017-03-16 - 20:41
Hey alyada, it's hard to say it in words but you'll eventually learn to not care what others think of you. It's not like you scream and moan because you're a bad person, it's not like you choose to do it. If people can't handle that your neurons fire weird like that then that's their problem. I wish that people knew more about epilepsy (I admittedly knew little before it affected me). Inspired by the pregnant woman who gave a trophy to the first man that gave her his subway seat, when you come to you could give out cards that say "I've got epilepsy, deal with it", and other side has more information on the disease.
Hi there alyada! Please don't
Submitted by Kernkraft on Tue, 2017-04-04 - 03:40
Hi there alyada! Please don't give up or feel depressed, I promise you it gets better and a lot of it is down to peace of mind, directly after seizures I'm always crying and feel so lost, like there is no-one and that my whole world has disappeared, but once you get your own thinking back, something the people I have surrounded myself with have helped towards, is letting me know to not feel embarrassed because they purely care that I am safe and are upset to see me such a way. It honestly comes from a different peace of mind and instead of focusing on the epilepsy, focus on becoming the best version of yourself and your confidence will help you overcome these feelings, just don't let the natural depression it causes become you as there is a world of happiness out there and some suffer with far worse things than our forms of epilepsy, that's the way I try and look at things and try and think how lucky I am to only have what I have.Below I'm going to paste a reply I put to a different topic but hopefully some of the bits I've put about lifestyle and choice might help you on your journey, but by all means, if you would like someone to talk to or to ask any questions so you don't feel as alone in this, then I am happy to be here to talk, we have to help each other In this world.
Do yo hav a hobbie? Yoga?
Submitted by mereloaded on Thu, 2017-03-16 - 14:18
Do yo hav a hobbie? Yoga? Coloring? Planting a garden?