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Dealing with the fear
Sun, 02/09/2020 - 05:29Hi. I've had epilepsy for 10+ years now but still haven't learned to deal with the fear of having a seizure which leads to a seizure and more fear etc A vicious cycle. I have complex partial seizures, and the day after an especially bad one I can hardly move for the fear. I bring them on through interacting with people mainly. How do you guys deal with the fear?
Comments
Hi, Thank you for posting.
Submitted by Anonymous on Mon, 2020-02-10 - 09:23
Hi, Thank you for posting. Being diagnosed with epilepsy can be upsetting and make you feel isolated and alone. However, it’s important to remember that you are not alone, and we are here to help support you. If you ever need to speak with someone please contact our Epilepsy and Seizures 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources.1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline One of the most important things to help you live with epilepsy is to find a support network. Learn more about your community support options here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concernsWe know that living with epilepsy is more than just knowing your type of seizures or what medicine to take. It also means learning how to handle the way epilepsy affects your life including your physical well-being, social and emotional health. https://www.epilepsy.com/living-epilepsy/healthy-livingYou may want to consider participating in treatment, seizure and lifestyle management programs, which can help people with epilepsy learn skills to better manage their epilepsy and its effects on daily life: https://www.epilepsy.com/learn/managing-your-epilepsy/what-managing-epilepsy-well-networkYou may also want to consider keeping a journal or diary. My Seizure Diary:https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for identifying & tracking seizures, setting reminders, managing medications & side effects, recording medical history, moods, behaviors,triggers, and other therapies or personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. For more information, skills and resources that will help you manage seizures and epilepsy more easily, visit: https://www.epilepsy.com/learn/managing-your-epilepsy
thanks.
Submitted by freethemind on Tue, 2020-02-11 - 11:44
thanks.
As a child I was almost in a
Submitted by birdman on Sun, 2020-02-09 - 12:09
As a child I was almost in a panic when I had the seizures. At some point I decided I did not want to let panic and fear dominate. Over several years I learned to relax by taking deep breaths with the seizure. Also as I learned more what these sensations were I was able to tell myself, "It's only a seizure; it'll go away soon..." Knowledge and understanding about what is happening has been helpful.