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Both My Husband & I

Mon, 11/11/2019 - 19:47
So I met my husband while attending college in the year 2008, he was 19 and I was 18. We moved in together the year 2012 into a house his mom had passed down to him, and December 2013 my husband had his first seizure in his SLEEP. We rushed to the ER but we all just assumed it was from us partying hard the night B4. About 6months passed by and he had a second, from there on out he kept having them also having them while awake. Now in the year 2016 I had my first seizure.... we were all shocked, I’ve never played sports, I’ve never had any head injuries. My seizures started out the same way, I went a good 6 or 7 months before my second until we fast forward to this current day and I am having them every 3weeks to a month. As of this week my husband and I both had seizures on Friday, this is not a coincidence, IT CAN’T BE. We both spoke with a Neuro Doctor and they told us it could be a coincidence, all our EEG came back normal, blood work, MRI, ETC. all came back normal. Has anybody ever experienced this?? Is Epilepsy contagious? Could it be something in the house? I can’t put my finger on it but it has to be a common ground somewhere. We gave up drinking in 2017... that didn’t help, we do smoke Marijuana, my Neuro Doctor said she wasn’t concerned at this moment about that. Any suggestions????? 1 last thing, another common friend of Me and my husband developed seizures out of the blue our 2nd year in college but years later stopped having them. COULD WE BE OVERLOOKING SOMETHING WE SHOULD LOOK INTO???? Please I need some type of help

Comments

Hi, Thank you for posting and

Submitted by Anonymous on Tue, 2019-11-12 - 08:44
Hi, Thank you for posting and we understand your concerns.We cannot determine the cause of your epilepsy or his, but it’s important to note that Epilepsy is not contagious. Epilepsy and seizures can develop in any person at any age and 1 in 26 people will develop epilepsy in their lifetime. To learn more about epilepsy, please visit:  https://www.epilepsy.com/learn/about-epilepsy-basicsTreatment varies for each individual. The effects and risks of so-called recreational drugs vary greatly, they may directly affect the brain and seizures or interact with seizure medications: https://www.epilepsy.com/learn/triggers-seizures/drug-abuse                                                                                        It’s important that you all discuss this further with your healthcare teams to review how marijuana use may affect your individual treatment plans and if either of you experience changes in seizure types/frequency, behaviors, sides effects & symptoms.                        If you have not already, you all may want to consider seeing an epileptologist (epilepsy specialist). For assistance finding a specialist near you, please visit: https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist A key part of managing epilepsy is knowing how it can affect a person's independence and day-to-day needs. Visit our independent living pages here: https://www.epilepsy.com/living-epilepsy/independent-living  to learn more about resources that are available & when help is needed. Review our women and epilepsy section of our website with your wife, to learn more about issues that are unique to her as a woman with epilepsy. https://www.epilepsy.com/living-epilepsy/women Create an individual seizure response or action plan: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms which is a helpful tool for those around you and you’re husband to understand what to do if you or ifhe has a seizure.  Use a journal or diary to track seizures, record medical history, set reminders, manage medications, side effects, moods, behaviors, recognizing triggers and health events that may affect seizures and wellness, which can be shared with your healthcare teamshttps://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary Review our seizure alert device factsheet with her doctor, to see if a seizure alert device is an option for you or for him:  https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfSometimes it's helpful to connect with other people who live with epilepsy, to ask questions, share experiences, find & give support to each other. Contact your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community. Or contact 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline    

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