Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Anterograde and or Retrograde Amnesia

Fri, 07/26/2019 - 17:36
Is anyone aware of any support organizations that deals with Anterograde and or Retrograde Amnesia? I am NOT refering to Altzheimers Disease or dimentia.

Comments

Hi jblowitski, Thanks for

Submitted by Anonymous on Mon, 2019-07-29 - 09:05
Hi jblowitski, Thanks for posting. Please contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000, contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional support.epilepsy.com/helpline Or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates

I'm in the UK so not a great

Submitted by Merlin_5cb8de5dcfaa5 on Fri, 2019-08-09 - 15:17
I'm in the UK so not a great deal of use but have you had an MRI to rule out Hippocampal Sclerosis? If not, I would get that done ASAP to make sure you have no lesions. Such lesions will cause the symptoms you refer to - particularly with regards to your episodic memory - recalling what you do or say, hear or see.In the UK, I'm lucky to be seeing some of the world's leading professors on this subject and the short answer is no. You may be able to lessen the severity by lowering the ictal (seizure) activity but that will depend on how regularly you have simple partial seizures.Their research team is testing the efficacy of Acetylcholinesterase inhibitors, which are basically medications that are given to those with Alzheimers.In your case, start by checking any MRI for lesions in the Hippocampus and also finding out the level of genuine seizure activity. Knowing both of those will give an idea of where you can go and what you will have to deal with.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.