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Congressional Inquiry
Mon, 08/27/2007 - 14:53Comments
Re: Congressional Inquiry
Submitted by Anonymous on Wed, 2007-09-05 - 09:26
It's not unusual for kids with severe seizures to need special beds. The person's doctor would need to write a strong letter of medical necessity however. Is the family being seen at an epilepsy centers? Ask if there is a social worker or nurse specializing in epilepsy who may know local resources.
It may also help to work directly with the Center for Medicare and Medicaid Services in Washington. Here's the link to their website on durable medical equipment and I think you'd want to make the case that the bed would be considered one of these.
Hope this helps!
Epi_help Resource Specialist, epilepsy.comIt's not unusual for kids with severe seizures to need special beds. The person's doctor would need to write a strong letter of medical necessity however. Is the family being seen at an epilepsy centers? Ask if there is a social worker or nurse specializing in epilepsy who may know local resources.
It may also help to work directly with the Center for Medicare and Medicaid Services in Washington. Here's the link to their website on durable medical equipment and I think you'd want to make the case that the bed would be considered one of these.
Hope this helps!
Epi_help Resource Specialist, epilepsy.com
Hello! Obviously I don't
Submitted by SunflowerPower on Mon, 2007-08-27 - 15:33
Hello! Obviously I don't know what their particular situation is, but I've done a bit of research on enclosed beds, and all the research I've found says that enclosed canopy beds can be very dangerous, and should only be used in a hopsital setting. The FDA recently recalled a particular canopy bed for that very reason. You can find more about the recall here... http://www.fda.gov/cdrh/safety/032505-vail.html My best wishes to the family who must be going though a very difficult time.