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I need to vent about my seizures.

Wed, 07/06/2005 - 17:53
Topic: Corner Booth
Hello everyone,Yes Even I need to Vent about my seizures.I feel like Im loosing it totally;anyone ever feel like that?My hubby tries be supportive but he hasn't had a seizure in 33 yrs .Im happy for him and Im jealous to.My own family doesn't understand why I get depressed about my seizures.I'll go on with my life and if I end up in E/R and the doc ask if I took my meds he gets a look if looks could kill.My writing in my website helps if that makes any sense?I start getting anger out.When friends ask if Itake my meds I want to scream!Im sure everyone has run into ppl like I have complete morons. Belinda

Comments

RE: I need to vent about my seizures.

Submitted by dayna on Wed, 2005-07-06 - 17:53

Hi Belinda,

I feel like I am losing  it quite often.   Every time I hear  something or  smell something that  is not there.  Those Simple partials can  drive a person  crazy.  I will search all over trying  to  find it...only to find out it is just  me.

I can empathize girl,  about people thinking we don't take our meds.  What? Do  they  think we LIKE to seize? Come on ...Of course you  took your meds.

I'm glad that  you  created that website.   I thought  it was informative.  I am glad that having that outlet  has helped you.

Dayna

Hi Belinda,

I feel like I am losing  it quite often.   Every time I hear  something or  smell something that  is not there.  Those Simple partials can  drive a person  crazy.  I will search all over trying  to  find it...only to find out it is just  me.

I can empathize girl,  about people thinking we don't take our meds.  What? Do  they  think we LIKE to seize? Come on ...Of course you  took your meds.

I'm glad that  you  created that website.   I thought  it was informative.  I am glad that having that outlet  has helped you.

Dayna

RE: RE: I need to vent about my seizures.

Submitted by Belinda on Thu, 2005-07-07 - 06:00
Dayna,Thankyou for the compliment on my website.MY seizures seem to have slowed down. I hope so anyway.I'll be working on my site today.I'm going to send my address to a friend who use to work epilepsy foundation in my state went around teaching teachers,police or who ever needed it what to do if they saw a seizures told them what not to do also.be good now.Belinda

RE: RE: RE: I need to vent about my seizures.

Submitted by Kristi on Thu, 2005-07-07 - 07:31

Belinda,

 

Good Morning, I too enjoy your website!! About venting, were only human and we all have to vent at times. Nothing is wrong with it. I don't have epilepsy but my two sons do. One has been seizure free going on 5 years But, my oldest 15 has been having them about every 5 days and when he has a seizure I feel the life going right out of me. It just takes my heart. I can't imagine what it does to him. He is positive most of the time but, when he is bummed I tell him it's ok everyone has a bad day once in a while. With or without seizures. We will NEVER give up trying. Belinda, Thank you so much for your website!! God Bless  Kristi

Belinda,

 

Good Morning, I too enjoy your website!! About venting, were only human and we all have to vent at times. Nothing is wrong with it. I don't have epilepsy but my two sons do. One has been seizure free going on 5 years But, my oldest 15 has been having them about every 5 days and when he has a seizure I feel the life going right out of me. It just takes my heart. I can't imagine what it does to him. He is positive most of the time but, when he is bummed I tell him it's ok everyone has a bad day once in a while. With or without seizures. We will NEVER give up trying. Belinda, Thank you so much for your website!! God Bless  Kristi

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