My Life With Epilepsy or Should I Say No Life?

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I used to have a life. A real life, even with epilepsy undiagnosed from childhood. When I started to have bigger problems than I thought I could cope with on my own, I went to the doctor for help. That was the biggest mistake in my life. The rest is history and current events. I started a blog, partly to save my own life. I think it has. I'm alive and kicking (lol, the seizures make me do that). Please read it if you want to know my story. I would love to hear from the rest of you on this site. I complain about this site a lot and many of you probably wonder why I'm here. I'm here because of all of you. Thanks and I'm looking forward to your comments. You can leave them here or on any one of my blog posts. Click on this link to leave a comment on my blog. For those of you who left comments, you can click on the same link to view my replies as you clicked to leave them or you can subscribe. Click on this link to subscribe to the comment feed. Baruch Hashem. Hoshia na.

Comments

Re: My Life With Epilepsy or Should I Say No Life?

Submitted by zealot on Tue, 2010-11-16 - 11:53

Hello Everyone, I just put up a new post. It's huge so it may take awhile to load. Please be patient. It's a very serious post. It's about the exploitation of people unable to take care of themselves or not allowed to take care of themselves. In other words, it's about people like us. The pictures are links. The picture of Tennessee Ernie Ford is a link to the chorus to 16 Tons as sung by him. It's a pretty cool post. There are also embedded pdf files of some important stuff. You don't have to read them, but there's some really interesting stuff if you have the time or the inclination. Even the picture above my signature is a link. Click, click, click, please. Thanks for reading. Thanks for your comments. I really appreciate your interest. I'm trying to do something important and I can't do it without your help. Baruch Hashem. Hoshia na. Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help! P.S. Please read my blog. Thanks. P.P.S. Please click here to read my latest post.

Re: My Life With Epilepsy or Should I Say No Life?

Submitted by zealot on Wed, 2010-11-17 - 05:09

Hi Everyone. Thank you for reading my blog. I just put up a new post. It's not nearly as elaborate as the last one, but I'm not feeling very well. I would really appreciate it if you read it. It makes me really happy when I see that people are reading the blog. The post is about looking for a life. That's all I want. I want my life back. The link to the post is at the end of this comment. I would appreciate comments from any of you. On this forum would be nice and on my blog would be even nicer. Thanks. Baruch Hashem. Hoshia na. Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help! P.S. Please read my blog. Thanks. P.P.S. Please click here to read my latest post.

Re: My Life With Epilepsy or Should I Say No Life?

Submitted by zealot on Wed, 2010-11-17 - 13:26

Hello Everyone, I don't have a new post. I'm too sick to write one. I had seizures most of last night and I'm having one right now. My hands are shaking and I can hardly type. I had to stop for awhile. It's a little better now. Phylis and Bruce. I'm sorry that you feel hurt or insulted by what I have said. I do not mean to hurt people's feelings. I am more than a little emotional about this subject as I have been so severely harmed by people with good and bad intentions alike. The road to hell is paved with good intentions. I remember that every time I reach out to try to help someone. One has to be very careful not to cause harm. I am very protective of the people on this site. Most of us are extremely vulnerable and there are many who would and do exploit us. I go around flagging spam comments on this site and then I get the damn gotcha when I try to put up links to my blog posts, which are not spam. And why are the emedicine WebMd links spammed? That site has good info. Better than WIKI and the cause du jour sites. I am just sick and tired of people who pretend to help and don't even bother to carefully read what someone wrote. I'm sick and tired of people who act like they know everything and don't admit when they're wrong. I don't know everything and I admit when I make mistakes. Especially since all the seizures I sometimes mix things up or get them backwards in some weird dyslectic kind of way only it's not dyslexia because it doesn't have to do with words. I have dicalculia too. That's dyslexia but with numbers instead of letters. And I have the same trouble with dates and time. Weird brain damage neuro stuff. Thank G-d for spell checkers. I called the New Jersey Division of Civil Rights and I actually got a sympathetic response. An investigator will call me! I don't have to deal with complaint forms! Halleluja! I'll have to wait until next week. I may be out on the street, but I'll still have my phone. Modern technology. Gotta love it. I'm all numb, tingly, and pins and needly, even inside my mouth and my tongue. It's really uncomfortable. My vision is all blurred and I'm seeing double. I don't know how much more of this I can take. I'm writing this to you guys here first because there are so many of you whom I have come to consider friends. I really care about my peers on this site and that is why I keep coming back. The give and take is really valuable. I may not like the people who run this site, but that doesn't mean that I don't like these fora. I hate the censor trap and I don't like the way I've been treated by epi-help. There's a lot more to that story than any of you know. I'm starting to have another seizure so I'm goin to wrap up this post. Thank G-d I can touch type because I can hardly see the screen or the keyboard. Baruch Hashem. Hoshia na. Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help! P.S. Please read my blog. Thanks. P.P.S. Please click here to read my latest post.

Hello Everyone, I don't have a new post. I'm too sick to write one. I had seizures most of last night and I'm having one right now. My hands are shaking and I can hardly type. I had to stop for awhile. It's a little better now. Phylis and Bruce. I'm sorry that you feel hurt or insulted by what I have said. I do not mean to hurt people's feelings. I am more than a little emotional about this subject as I have been so severely harmed by people with good and bad intentions alike. The road to hell is paved with good intentions. I remember that every time I reach out to try to help someone. One has to be very careful not to cause harm. I am very protective of the people on this site. Most of us are extremely vulnerable and there are many who would and do exploit us. I go around flagging spam comments on this site and then I get the damn gotcha when I try to put up links to my blog posts, which are not spam. And why are the emedicine WebMd links spammed? That site has good info. Better than WIKI and the cause du jour sites. I am just sick and tired of people who pretend to help and don't even bother to carefully read what someone wrote. I'm sick and tired of people who act like they know everything and don't admit when they're wrong. I don't know everything and I admit when I make mistakes. Especially since all the seizures I sometimes mix things up or get them backwards in some weird dyslectic kind of way only it's not dyslexia because it doesn't have to do with words. I have dicalculia too. That's dyslexia but with numbers instead of letters. And I have the same trouble with dates and time. Weird brain damage neuro stuff. Thank G-d for spell checkers. I called the New Jersey Division of Civil Rights and I actually got a sympathetic response. An investigator will call me! I don't have to deal with complaint forms! Halleluja! I'll have to wait until next week. I may be out on the street, but I'll still have my phone. Modern technology. Gotta love it. I'm all numb, tingly, and pins and needly, even inside my mouth and my tongue. It's really uncomfortable. My vision is all blurred and I'm seeing double. I don't know how much more of this I can take. I'm writing this to you guys here first because there are so many of you whom I have come to consider friends. I really care about my peers on this site and that is why I keep coming back. The give and take is really valuable. I may not like the people who run this site, but that doesn't mean that I don't like these fora. I hate the censor trap and I don't like the way I've been treated by epi-help. There's a lot more to that story than any of you know. I'm starting to have another seizure so I'm goin to wrap up this post. Thank G-d I can touch type because I can hardly see the screen or the keyboard. Baruch Hashem. Hoshia na. Devorah Zealot Soodak <a href="http://psychout.typepad.com/">http://psychout.typepad.com/</a> the zealot needs help! P.S. Please read my <a href="http://psychout.typepad.com/">blog</a>. Thanks. P.P.S. <a href="http://psychout.typepad.com/blog/2010/11/epilepsy-carpe-diem-how-can-a-homeless-zealot-make-a-life_google-health_mayo-clinic_medline-plus_webmd.html">Please click here to read my latest post.</a>

Hello Everyone, I don't have a new post. I'm too sick to write one. I had seizures most of last night and I'm having one right now. My hands are shaking and I can hardly type. I had to stop for awhile. It's a little better now. Phylis and Bruce. I'm sorry that you feel hurt or insulted by what I have said. I do not mean to hurt people's feelings. I am more than a little emotional about this subject as I have been so severely harmed by people with good and bad intentions alike. The road to hell is paved with good intentions. I remember that every time I reach out to try to help someone. One has to be very careful not to cause harm. I am very protective of the people on this site. Most of us are extremely vulnerable and there are many who would and do exploit us. I go around flagging spam comments on this site and then I get the damn gotcha when I try to put up links to my blog posts, which are not spam. And why are the emedicine WebMd links spammed? That site has good info. Better than WIKI and the cause du jour sites. I am just sick and tired of people who pretend to help and don't even bother to carefully read what someone wrote. I'm sick and tired of people who act like they know everything and don't admit when they're wrong. I don't know everything and I admit when I make mistakes. Especially since all the seizures I sometimes mix things up or get them backwards in some weird dyslectic kind of way only it's not dyslexia because it doesn't have to do with words. I have dicalculia too. That's dyslexia but with numbers instead of letters. And I have the same trouble with dates and time. Weird brain damage neuro stuff. Thank G-d for spell checkers. I called the New Jersey Division of Civil Rights and I actually got a sympathetic response. An investigator will call me! I don't have to deal with complaint forms! Halleluja! I'll have to wait until next week. I may be out on the street, but I'll still have my phone. Modern technology. Gotta love it. I'm all numb, tingly, and pins and needly, even inside my mouth and my tongue. It's really uncomfortable. My vision is all blurred and I'm seeing double. I don't know how much more of this I can take. I'm writing this to you guys here first because there are so many of you whom I have come to consider friends. I really care about my peers on this site and that is why I keep coming back. The give and take is really valuable. I may not like the people who run this site, but that doesn't mean that I don't like these fora. I hate the censor trap and I don't like the way I've been treated by epi-help. There's a lot more to that story than any of you know. I'm starting to have another seizure so I'm goin to wrap up this post. Thank G-d I can touch type because I can hardly see the screen or the keyboard. Baruch Hashem. Hoshia na. Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help! P.S. Please read my blog. Thanks. P.P.S. Please click here to read my latest post.

My Life With Epilepsy or Should I Say No Life?

Comments

Re: My Life With Epilepsy or Should I Say No Life?

Submitted by zealot on Tue, 2010-11-16 - 11:53

Re: My Life With Epilepsy or Should I Say No Life?

Submitted by zealot on Wed, 2010-11-17 - 05:09

Re: My Life With Epilepsy or Should I Say No Life?

Submitted by zealot on Wed, 2010-11-17 - 13:26

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