Why Is Advocacy Important?

The Foundation’s programs, services, advocacy, and research initiatives have made significant progress, but there is still a lot of work to be done on the local, state, and federal levels to raise awareness about epilepsy and the issues affecting the epilepsy community.  

Congress and state legislatures are constantly considering and putting in place policies that can affect the epilepsy community. The best way to make sure that your needs are considered in these decisions is by sharing your story and explaining how these policies would affect you. You know first-hand the challenges that come from living with epilepsy. Your experiences help inform your story. Without speaking up and telling your story, elected officials may never know what epilepsy is, what living with epilepsy is like or even know that an issue is important to you. The Epilepsy Foundation is here to support you with the tools and resources you need to be an effective epilepsy advocate.

Epilepsy Foundation Advocacy Priorities

The Epilepsy Foundation advocates on behalf of people with epilepsy and their family members and caregivers to overcome the challenges of living with epilepsy and accelerate therapies to stop seizures, find cures and save lives. Our priorities include:

  • Ensuring access to quality health care that is affordable, physician-directed and patient-centered;
  • Securing federal funding for epilepsy programs, research and treatments at institutions including the Centers for Disease Control and Prevention (CDC), National Institutes of Health (NIH), and Food and Drug Administration (FDA);
  • Safeguarding disability rights and ending discrimination through awareness; and
  • Fostering biomedical innovation through incentivizing development of new therapies and the promotion of research to gain a better understanding of causes, consequences, and outcomes, and, ultimately, cures for all the epilepsies. 

Join our Speak Up Speak Out advocacy network and help us raise awareness with public officials about the public policy issues important to the epilepsy community.

Authored Date: 
Thursday, September 19, 2019