Joining the Resource Database
The Epilepsy Foundation of America, (EFA), provides information and referral services to people with epilepsy and their families. To assist in this endeavor, the EFA maintains an electronic resource database of programs and services throughout the United States and, where appropriate, resources outside the United States when those resources meet the needs of persons with epilepsy and the EFA’s growing international web presence.
The EFA seeks to include in its database Epilepsy Foundation local offices, health and human service programs, and organizations that provide services to individuals with epilepsy, regardless of the physical location of the service provider. The EFA reserves the right to determine what organizations and programs are included or excluded from the EFA database. Although the inclusion/exclusion decision will be made primarily on the basis of the criteria listed below, the final determination of whether or not to include an organization or program shall be at the sole discretion of the EFA.
In order to be listed in the Epilepsy Foundation of America database, an agency must meet our inclusion criteria and provide an easily reachable contact person, with phone number, and address for administrative purposes. This information is only for Epilepsy Foundation staff use and will be considered private or unlisted if you request it.
- Although the inclusion/exclusion decision is primarily based on the inclusion/exclusion criteria, the final determination of whether to include an organization or program shall be the sole discretion of the EFA. Organizations typically included are non-profit, critical for-profit, religious groups, and coalitions that provide help or have a specialty in working with people with epilepsy.
- Private practices and agencies that do not specialize in working with people with epilepsy are usually excluded. Agencies that have been charged with or convicted of actions not in the best interest of those persons they serve, agencies that deny services on the basis of color, race, religion, gender, sexual orientation, ancestry, or nationality, and agencies that refuse without cause to accept referrals, are excluded from the database. Agencies that repeatedly fail to respond to requests for current program information may be removed from the database.
Agencies and programs must also provide an easy-to-reach method of contact for the public (toll-free telephone or FAX number, accessible walk-in location, actively used e-mail, etc.) and have an accessible contact person who will provide timely response to public inquiries about their organization and services.
Agencies who join the database agree to keep the Epilepsy Foundation informed of service changes (e.g. services provided, contact information, intake procedures, and eligibility requirements). An annual request for a review and update of your agency's information will be sent to each agency’s administrative contact. A completed annual review and update is a requirement for continued database membership.
The Epilepsy Foundation holds editorial rights to submitted information for style and standardization. Submitted information is used for the purpose of informing the public of community resources. Information is utilized by the Epilepsy Foundation Information Specialists and may be shared through printed directories, resource listings, and online databases.
HOW TO REGISTER YOUR AGENCY
Check to see if your agency is already listed in our database. Click here and enter your agency name in the search box and click Search for resources.
Please review the document. After reviewing the Inclusion/Exclusion document, if you have any questions regarding the requirements and criteria, please feel free to contact the Epilepsy & Seizures Helpline at 1.800.332.1000 Monday through Friday, 9:00 AM to 5:00 PM Eastern Time.
Complete the Agency, Program, and Site application forms. Each program must have a separate program form. A note of explanation regarding the way we organize agency information:
- Agency records contain information about your overall organization.
- Site records focus their information on the actual locations where you deliver your services, like the physical and mailing address of your program and how to get there using public transportation.
- Program records are about the services you deliver and include hours of operation, any application process, eligibility criteria, and more. If you entered any site locations, you will be asked to list those sites that offer the program.
If you prefer, you may download and return a fillable version of the application. Click here to download the application.
Please return your completed application:
Via Email: firstname.lastname@example.org
Via Fax: 301-731-3868
Via Postal Mail:
Attn: Epilepsy & Seizures Helpline
3540 Crain Highway, Suite 675
Bowie, MD 20716-1303
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