Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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![Sophia is sharing her journey with epilepsy during college](/sites/default/files/styles/stories_285x200/public/2024-04/Sophia%20Goldberg%20eJourney%20Banner.png?itok=zfOHPeS0)
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Thursday, April 18, 2024
You Are Stronger Than You Know
My first seizure was unexpected. I was 20, and it was my junior year of college. After numerous doctors and tests , I was diagnosed with generalized...
![Read Maya's story about how she manages epilepsy and seizures by listening to her body](/sites/default/files/styles/stories_285x200/public/2024-03/MayaWortmaneJourneyBanner_1200x630.jpg?itok=bOrHCHQZ)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Tuesday, April 02, 2024
Listen to Your Body
I first started having focal seizures in my senior year of high school in 2015. I was unsure what my body was doing and assumed it was just a twitch...
![Read Pasquale's story about how he overcame low self-esteem to share his epilepsy story](/sites/default/files/styles/stories_285x200/public/2024-03/PasqualeDeSavinoeJourneyWebBanner_1200x630.jpg?itok=tSQDa5m5)
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Friday, March 08, 2024
From Low Self-Esteem to Sharing My Story
Growing up, I was a very happy and healthy kid with no health concerns. Then, one day at a summer camp back in 2011, my health changed for the worse...
![Maddie is sharing her eJourney about how she manages life with epilepsy](/sites/default/files/styles/stories_285x200/public/2024-02/MaddieGilesWebBanner_1200x630.jpg?itok=HEszvKk4)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Tuesday, March 05, 2024
No Matter What Happens, I’ll Be Okay
In 2011, I had my first tonic-clonic seizure. I remember having muscle spasms that morning and feeling so out of touch. I couldn't tell what was real...
![Read Grace's story about the struggles she has faced and overcome with epilepsy](/sites/default/files/styles/stories_285x200/public/2024-02/Grace%20Robertson-VillamagnaeJourneyWebBanner_1200x630.jpg?itok=EeJ603mR)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Tuesday, February 27, 2024
Shedding Light on the Struggles of Living With Epilepsy
I remember the first time I had an absence seizure . I was in my fifth-grade math class when I decided to raise my hand to answer a question asked by...
![Read Kristy's epilepsy journey of hope](/sites/default/files/styles/stories_285x200/public/2024-02/KristyYoungbloodeJourneyBanner_1200x630.jpg?itok=oWy1zTdm)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Friday, February 23, 2024
Sharing My Journey of Hope
I had my first seizure in 2022. I was eight months pregnant. I had never had any symptoms before, and I had no warning signs. I was teaching in my 2nd...
![Read Joe's story about finding epilepsy treatment that works for him](/sites/default/files/styles/stories_285x200/public/2024-02/JoeOrnelaseJourneyBanner_1200x630.jpg?itok=kK_YxUAL)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Tuesday, February 20, 2024
Finding What Works for Me
In 1996, I was diagnosed with epilepsy after having a tonic-clonic seizure early one morning. I remember coughing as I regained consciousness. I...
![Andrew is sharing his journey about getting a correct diagnosis for seizures and a cause for his epilepsy](/sites/default/files/styles/stories_285x200/public/2024-01/AndrewFedoreJourneyWebBanner_1200x630.jpg?itok=kp6KvufH)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Tuesday, February 13, 2024
I Won't Hide Anymore
I've experienced the tight grip of epilepsy my entire adult life. In 2013, I needed answers as to why I was experiencing dizzy spells, so I went to...
![Read Caitlyn's story about how her epilepsy diagnosis motivated her to make a difference](/sites/default/files/styles/stories_285x200/public/2024-02/CaitlynJeffreyeJourneyBanner_1200x630.jpg?itok=--e6yZjr)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Wednesday, February 07, 2024
Motivated to Make A Difference
I was diagnosed with benign rolandic epilepsy (BRE) about ten years ago when I had two documented tonic-clonic seizures. Not only was I diagnosed with...
![Read about how Sophia is spreading awareness about epilepsy and seizures](/sites/default/files/styles/stories_285x200/public/2024-01/SophiaCortezeJourneyWebBanner_1200x630.jpg?itok=d077B7OY)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Wednesday, January 24, 2024
Overcoming Challenges To Make a Difference
My name is Sophia, and I am 20 years old. I have lived with epilepsy for 13 years, since I was diagnosed at 7 years old. My epilepsy is caused by a...