Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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![Read Pasquale's story about how he overcame low self-esteem to share his epilepsy story](/sites/default/files/styles/stories_285x200/public/2024-03/PasqualeDeSavinoeJourneyWebBanner_1200x630.jpg?itok=tSQDa5m5)
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Friday, March 08, 2024
From Low Self-Esteem to Sharing My Story
Growing up, I was a very happy and healthy kid with no health concerns. Then, one day at a summer camp back in 2011, my health changed for the worse...
![Read Grace's story about the struggles she has faced and overcome with epilepsy](/sites/default/files/styles/stories_285x200/public/2024-02/Grace%20Robertson-VillamagnaeJourneyWebBanner_1200x630.jpg?itok=EeJ603mR)
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Tuesday, February 27, 2024
Shedding Light on the Struggles of Living With Epilepsy
I remember the first time I had an absence seizure . I was in my fifth-grade math class when I decided to raise my hand to answer a question asked by...
![Read Megan's eJourney about overcoming the challenges of living with seizures](/sites/default/files/styles/stories_285x200/public/2024-01/MeganWilsoneJourneyWebBanner_1200x630.jpg?itok=920YqlEJ)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Friday, February 02, 2024
Overcoming the Challenges of Living With Seizures
I was diagnosed with epilepsy at the age of 12. My first seizure occurred during our family vacation while I was wading in the waves at the beach. My...
![Read Colby's eJourney about how support helped him overcome the challenges of living with epilepsy](/sites/default/files/styles/stories_285x200/public/2024-01/ColbyAguayoeJourneyBanner_1200x630.jpg?itok=tQmWSAfW)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Monday, January 22, 2024
Finding My Strength in a Supportive Community
Epilepsy caused a significant turning point in my life. It all started when I was 13 years old. I had my very first seizure at almost midnight on my...
![Read about Matthew's journey with Dravet Syndrome](/sites/default/files/styles/stories_285x200/public/2023-12/Yvette%20Metzger%28Matthew%29eJourneyWebBanner_1200x630.jpg?itok=nUfw6Ag-)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Tuesday, December 19, 2023
Matthew's Journey With Dravet Syndrome
Matthew was diagnosed with epilepsy at 7 months old. We were convinced it was a one-time seizure. His siblings witnessed it and said he looked like a...
![Read Jordan’s story about why educating others about epilepsy is important](/sites/default/files/styles/stories_285x200/public/2023-11/JordanArmstrongeJourneyWebBanner_1200x630.jpg?itok=t8DJofhH)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Thursday, November 30, 2023
Educating Others About Epilepsy
I was 22 years old when I was diagnosed with epilepsy. In January 2022, I woke up with what felt like a severely swollen tongue, blood on the pillow...
![Jeremiah is sharing his story about advocating for epilepsy awareness](/sites/default/files/styles/stories_285x200/public/2023-11/JeremiahStone_eJourneyWebBanner_1200x630.jpg?itok=W_sQs-q6)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Tuesday, November 14, 2023
Advocating for Myself and Others With Epilepsy
In the fall of 2017, I did not know much about epilepsy. Sure, I had heard about it, but I had no idea what triggers were or that epilepsy affected so...
![Allie is sharing her journey with epilepsy and pregnancy](/sites/default/files/styles/stories_285x200/public/2023-11/AllieSkurskieJourneyWebBanner1200x630.jpg?itok=ChVqQ2Qv)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Thursday, November 02, 2023
My Journey With Epilepsy and Pregnancy
I was diagnosed with atypical absence seizures as a child. I was having hundreds per day and not knowing. To my parents and teachers, it could be...
![Rachel is sharing her eJourney about how her community helps her face epilepsy](/sites/default/files/styles/stories_285x200/public/2023-05/RachelRobinsoneJourneyBanner1200x630.png?itok=wcGvQb2x)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Thursday, May 04, 2023
Facing Epilepsy with My Community
I was diagnosed with epilepsy in 2005 at the age of 25. Throughout my journey with epilepsy, I’ve had many different types of seizures. Most of the...
![Lowell is sharing his journey with epilepsy to inspire and encourage others](/sites/default/files/styles/stories_285x200/public/2023-04/Lowell%20Evans%201200%20x630%20eJourney%20Banner.jpg?itok=jGSKy7BN)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Thursday, April 13, 2023
My Journey with Epilepsy
My life with epilepsy has been very interesting. I was not diagnosed until I was 20 years old and, I had never heard of the condition. I was lost. I...