Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
11 -
20
of
57
results
0 results found
![Andrew is sharing his journey about getting a correct diagnosis for seizures and a cause for his epilepsy](/sites/default/files/styles/stories_285x200/public/2024-01/AndrewFedoreJourneyWebBanner_1200x630.jpg?itok=kp6KvufH)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Tuesday, February 13, 2024
I Won't Hide Anymore
I've experienced the tight grip of epilepsy my entire adult life. In 2013, I needed answers as to why I was experiencing dizzy spells, so I went to...
![Read Caitlyn's story about how her epilepsy diagnosis motivated her to make a difference](/sites/default/files/styles/stories_285x200/public/2024-02/CaitlynJeffreyeJourneyBanner_1200x630.jpg?itok=--e6yZjr)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Wednesday, February 07, 2024
Motivated to Make A Difference
I was diagnosed with benign rolandic epilepsy (BRE) about ten years ago when I had two documented tonic-clonic seizures. Not only was I diagnosed with...
![Read Megan's eJourney about overcoming the challenges of living with seizures](/sites/default/files/styles/stories_285x200/public/2024-01/MeganWilsoneJourneyWebBanner_1200x630.jpg?itok=920YqlEJ)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Friday, February 02, 2024
Overcoming the Challenges of Living With Seizures
I was diagnosed with epilepsy at the age of 12. My first seizure occurred during our family vacation while I was wading in the waves at the beach. My...
![Read about how Sophia is spreading awareness about epilepsy and seizures](/sites/default/files/styles/stories_285x200/public/2024-01/SophiaCortezeJourneyWebBanner_1200x630.jpg?itok=d077B7OY)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Wednesday, January 24, 2024
Overcoming Challenges To Make a Difference
My name is Sophia, and I am 20 years old. I have lived with epilepsy for 13 years, since I was diagnosed at 7 years old. My epilepsy is caused by a...
![Read Colby's eJourney about how support helped him overcome the challenges of living with epilepsy](/sites/default/files/styles/stories_285x200/public/2024-01/ColbyAguayoeJourneyBanner_1200x630.jpg?itok=tQmWSAfW)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Monday, January 22, 2024
Finding My Strength in a Supportive Community
Epilepsy caused a significant turning point in my life. It all started when I was 13 years old. I had my very first seizure at almost midnight on my...
![Read about Matthew's journey with Dravet Syndrome](/sites/default/files/styles/stories_285x200/public/2023-12/Yvette%20Metzger%28Matthew%29eJourneyWebBanner_1200x630.jpg?itok=nUfw6Ag-)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Tuesday, December 19, 2023
Matthew's Journey With Dravet Syndrome
Matthew was diagnosed with epilepsy at 7 months old. We were convinced it was a one-time seizure. His siblings witnessed it and said he looked like a...
![Read Emily's eJourney about being a teenager with epilepsy](/sites/default/files/styles/stories_285x200/public/2023-11/EmilyKnotteJourneyBanner_1200x630.jpg?itok=xxZNSSh9)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Monday, December 11, 2023
Don't Let Epilepsy Define You
In October of 2021, I was 14 years old and a freshman in high school eating lunch when my first tonic-clonic seizure occurred. I had my second tonic...
![Read Jordan’s story about why educating others about epilepsy is important](/sites/default/files/styles/stories_285x200/public/2023-11/JordanArmstrongeJourneyWebBanner_1200x630.jpg?itok=t8DJofhH)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Thursday, November 30, 2023
Educating Others About Epilepsy
I was 22 years old when I was diagnosed with epilepsy. In January 2022, I woke up with what felt like a severely swollen tongue, blood on the pillow...
![Jeremiah is sharing his story about advocating for epilepsy awareness](/sites/default/files/styles/stories_285x200/public/2023-11/JeremiahStone_eJourneyWebBanner_1200x630.jpg?itok=W_sQs-q6)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Tuesday, November 14, 2023
Advocating for Myself and Others With Epilepsy
In the fall of 2017, I did not know much about epilepsy. Sure, I had heard about it, but I had no idea what triggers were or that epilepsy affected so...
![Allie is sharing her journey with epilepsy and pregnancy](/sites/default/files/styles/stories_285x200/public/2023-11/AllieSkurskieJourneyWebBanner1200x630.jpg?itok=ChVqQ2Qv)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Thursday, November 02, 2023
My Journey With Epilepsy and Pregnancy
I was diagnosed with atypical absence seizures as a child. I was having hundreds per day and not knowing. To my parents and teachers, it could be...