Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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![Read Caitlyn's story about how her epilepsy diagnosis motivated her to make a difference](/sites/default/files/styles/stories_285x200/public/2024-02/CaitlynJeffreyeJourneyBanner_1200x630.jpg?itok=--e6yZjr)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Wednesday, February 07, 2024
Motivated to Make A Difference
I was diagnosed with benign rolandic epilepsy (BRE) about ten years ago when I had two documented tonic-clonic seizures. Not only was I diagnosed with...
![Read Colby's eJourney about how support helped him overcome the challenges of living with epilepsy](/sites/default/files/styles/stories_285x200/public/2024-01/ColbyAguayoeJourneyBanner_1200x630.jpg?itok=tQmWSAfW)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Monday, January 22, 2024
Finding My Strength in a Supportive Community
Epilepsy caused a significant turning point in my life. It all started when I was 13 years old. I had my very first seizure at almost midnight on my...
![Read Emily's eJourney about being a teenager with epilepsy](/sites/default/files/styles/stories_285x200/public/2023-11/EmilyKnotteJourneyBanner_1200x630.jpg?itok=xxZNSSh9)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Monday, December 11, 2023
Don't Let Epilepsy Define You
In October of 2021, I was 14 years old and a freshman in high school eating lunch when my first tonic-clonic seizure occurred. I had my second tonic...
![Read Jordan’s story about why educating others about epilepsy is important](/sites/default/files/styles/stories_285x200/public/2023-11/JordanArmstrongeJourneyWebBanner_1200x630.jpg?itok=t8DJofhH)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Thursday, November 30, 2023
Educating Others About Epilepsy
I was 22 years old when I was diagnosed with epilepsy. In January 2022, I woke up with what felt like a severely swollen tongue, blood on the pillow...
![Jeremiah is sharing his story about advocating for epilepsy awareness](/sites/default/files/styles/stories_285x200/public/2023-11/JeremiahStone_eJourneyWebBanner_1200x630.jpg?itok=W_sQs-q6)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Tuesday, November 14, 2023
Advocating for Myself and Others With Epilepsy
In the fall of 2017, I did not know much about epilepsy. Sure, I had heard about it, but I had no idea what triggers were or that epilepsy affected so...
![Allie is sharing her journey with epilepsy and pregnancy](/sites/default/files/styles/stories_285x200/public/2023-11/AllieSkurskieJourneyWebBanner1200x630.jpg?itok=ChVqQ2Qv)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Thursday, November 02, 2023
My Journey With Epilepsy and Pregnancy
I was diagnosed with atypical absence seizures as a child. I was having hundreds per day and not knowing. To my parents and teachers, it could be...
![Campbell is sharing her story about living in the moment with epilepsy](/sites/default/files/styles/stories_285x200/public/2023-10/Campbell%20MacyeJourneyBanner_1200x630.jpg?itok=3IMfGjPF)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Thursday, October 19, 2023
Living in the Moment With Epilepsy
My name is Campbell. I am 18, and I suffer from tonic-clonic seizures. My first seizure was a complete surprise, and so was the epilepsy diagnosis...
![Clint is sharing his epilepsy story about finding hope](/sites/default/files/styles/stories_285x200/public/2023-10/ClintMcMuprhyeJourneyWebBanner_1200x630.jpg?itok=tAir5xsZ)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
How I Found Hope on My Epilepsy Journey
I was three when I first had a tonic-clonic seizure. I can't imagine the thoughts that went through my mother's head. She is the definition of a true...
![Celia is sharing her journey with epilepsy and mental health to raise awareness](/sites/default/files/styles/stories_285x200/public/2023-09/CeliaAldomeJourneyWebBanner_1200x630.jpg?itok=oSch60lu)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Thursday, October 05, 2023
Raising Awareness for Epilepsy and Mental Health
My name is Sid, and I have focal epilepsy and tonic-clonic seizures. My first seizure occurred on February 9, 2022, before I got ready for school. I...
![Mathieu is sharing hist story about how seizures and epilepsy are not the same for everyone](/sites/default/files/styles/stories_285x200/public/2023-09/Mathieu%20RybarczyeJourneyBanner_1200x630.jpg?itok=99XLxClq)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Thursday, September 07, 2023
Not All Seizures Are the Same
I was born a normal baby boy in Maracaibo, Venezuela, in 1977. Things were simple, and I had no medical problems for the first few years. Then...