Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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Tuesday, December 19, 2023
Matthew's Journey With Dravet Syndrome
Matthew was diagnosed with epilepsy at 7 months old. We were convinced it was a one-time seizure. His siblings witnessed it and said he looked like a...
Monday, December 11, 2023
Don't Let Epilepsy Define You
In October of 2021, I was 14 years old and a freshman in high school eating lunch when my first tonic-clonic seizure occurred. I had my second tonic...
Thursday, November 30, 2023
Educating Others About Epilepsy
I was 22 years old when I was diagnosed with epilepsy. In January 2022, I woke up with what felt like a severely swollen tongue, blood on the pillow...
Tuesday, November 21, 2023
Epilepsy Awareness Is Critical
At 51, I was diagnosed with epilepsy. My first seizure caught me totally off guard. My day started off normally. Nothing was unusual. I was working...
Tuesday, November 14, 2023
Advocating for Myself and Others With Epilepsy
In the fall of 2017, I did not know much about epilepsy. Sure, I had heard about it, but I had no idea what triggers were or that epilepsy affected so...
Thursday, November 02, 2023
My Journey With Epilepsy and Pregnancy
I was diagnosed with atypical absence seizures as a child. I was having hundreds per day and not knowing. To my parents and teachers, it could be...
Tuesday, October 31, 2023
Sharing Our Stories to Create Awareness
I was diagnosed with epilepsy as an adult. My wife and I were driving home from Las Vegas, and apparently, I had experienced a seizure while in the...
Monday, October 30, 2023
Epilepsy Does Not Have Me
My epilepsy journey began at the age of 16 after I experienced two seizures in my sleep. I remember waking up with everyone around me and not knowing...
Thursday, October 05, 2023
Raising Awareness for Epilepsy and Mental Health
My name is Sid, and I have focal epilepsy and tonic-clonic seizures. My first seizure occurred on February 9, 2022, before I got ready for school. I...
Wednesday, June 28, 2023
Community Support Is Important for Caregivers
I was playing with our son Edward one morning when I noticed his eye twitch. He was 7 months old at the time. It seemed off, so I called our...