Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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![Read about Matthew's journey with Dravet Syndrome](/sites/default/files/styles/stories_285x200/public/2023-12/Yvette%20Metzger%28Matthew%29eJourneyWebBanner_1200x630.jpg?itok=nUfw6Ag-)
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Tuesday, December 19, 2023
Matthew's Journey With Dravet Syndrome
Matthew was diagnosed with epilepsy at 7 months old. We were convinced it was a one-time seizure. His siblings witnessed it and said he looked like a...
![Read Jordan’s story about why educating others about epilepsy is important](/sites/default/files/styles/stories_285x200/public/2023-11/JordanArmstrongeJourneyWebBanner_1200x630.jpg?itok=t8DJofhH)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Thursday, November 30, 2023
Educating Others About Epilepsy
I was 22 years old when I was diagnosed with epilepsy. In January 2022, I woke up with what felt like a severely swollen tongue, blood on the pillow...
![Darmita is sharing her story about why raising awareness about epilepsy is critical](/sites/default/files/styles/stories_285x200/public/2023-11/DarmitaWhiteeJourneyWebBanner_1200x630.jpg?itok=v7IdAPuK)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Tuesday, November 21, 2023
Epilepsy Awareness Is Critical
At 51, I was diagnosed with epilepsy. My first seizure caught me totally off guard. My day started off normally. Nothing was unusual. I was working...
![Jeremiah is sharing his story about advocating for epilepsy awareness](/sites/default/files/styles/stories_285x200/public/2023-11/JeremiahStone_eJourneyWebBanner_1200x630.jpg?itok=W_sQs-q6)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Tuesday, November 14, 2023
Advocating for Myself and Others With Epilepsy
In the fall of 2017, I did not know much about epilepsy. Sure, I had heard about it, but I had no idea what triggers were or that epilepsy affected so...
![Allie is sharing her journey with epilepsy and pregnancy](/sites/default/files/styles/stories_285x200/public/2023-11/AllieSkurskieJourneyWebBanner1200x630.jpg?itok=ChVqQ2Qv)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Thursday, November 02, 2023
My Journey With Epilepsy and Pregnancy
I was diagnosed with atypical absence seizures as a child. I was having hundreds per day and not knowing. To my parents and teachers, it could be...
![Manny is sharing his family's story to raise awareness about epilepsy](/sites/default/files/styles/stories_285x200/public/2023-10/eJourneyBannerMannyA1200x630.jpg?itok=vWuOzRQC)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Tuesday, October 31, 2023
Sharing Our Stories to Create Awareness
I was diagnosed with epilepsy as an adult. My wife and I were driving home from Las Vegas, and apparently, I had experienced a seizure while in the...
![Dulce shares her eJourney about how she has faced stigma surrounding epilepsy](/sites/default/files/styles/stories_285x200/public/2023-10/DulceGarciaCeniseroseJourneyWebBanner_1200x630.jpg?itok=bqrtd2WB)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Monday, October 30, 2023
Epilepsy Does Not Have Me
My epilepsy journey began at the age of 16 after I experienced two seizures in my sleep. I remember waking up with everyone around me and not knowing...
![Sarah's son Edward was diagnosed with epilepsy and she's sharing about the importance of community as a caregiver](/sites/default/files/styles/stories_285x200/public/2023-07/SarahReaveseJourneyBanner_1200x630.jpg?itok=KAy1ZPNF)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Wednesday, June 28, 2023
Community Support Is Important for Caregivers
I was playing with our son Edward one morning when I noticed his eye twitch. He was 7 months old at the time. It seemed off, so I called our...
![Rachel is sharing her eJourney about how her community helps her face epilepsy](/sites/default/files/styles/stories_285x200/public/2023-05/RachelRobinsoneJourneyBanner1200x630.png?itok=wcGvQb2x)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Thursday, May 04, 2023
Facing Epilepsy with My Community
I was diagnosed with epilepsy in 2005 at the age of 25. Throughout my journey with epilepsy, I’ve had many different types of seizures. Most of the...
![Lowell is sharing his journey with epilepsy to inspire and encourage others](/sites/default/files/styles/stories_285x200/public/2023-04/Lowell%20Evans%201200%20x630%20eJourney%20Banner.jpg?itok=jGSKy7BN)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Thursday, April 13, 2023
My Journey with Epilepsy
My life with epilepsy has been very interesting. I was not diagnosed until I was 20 years old and, I had never heard of the condition. I was lost. I...